ARTÍCULO

Intervención psicoeducativa para personas con enfermedad de Parkinson y familiares/cuidadores: resultados preliminares de la medición basal

Autores: Navarta Sánchez, María Victoria (Autor de correspondencia); Riverol Fernández, Mario; Ursúa, M. E.; Ambrosio Gutierrez, Leire; Senosiáin García, Juana María; Portillo, M. C.
Título de la revista: SOCIEDAD ESPAÑOLA DE ENFERMERIA NEUROLOGICA. REVISTA CIENTIFICA
ISSN: 2013-5246
Volumen: 49
Número: January - June 2019
Páginas: 16 - 22
Fecha de publicación: 2019
Lugar: Scopus
Resumen:
Introduction: Psychosocial adjustment affects the quality of life of patients with Parkinson's disease (PD) and his/her family/carers. However, this is not usually addressed in clinical practice. Objective: To evaluate coping skills, psychosocial adjustment and quality of life of patients with PD and their family/carers from a quasiexperiment at baseline time. Method: Quasi-experimental study carried out in Primary Care centres to evaluate the impact of a psychoeducational intervention in contrast with an informative intervention. The sample comprised 80 patients with PD and 80 family carers, divided into a control group and an experimental group. The psychosocial adjustment scale PAIS-SR, the coping scale Brief COPE and the quality of life scales PDQ-39 and SQLC were used in the data collection. The analysis of sociodemographic data and Student's t tests was performed using SPSS 23.0. Results: The patients and family/carers from the control group and the experimental group noticed a mild impairment in their quality of life and some difficulties in their psychosocial adjustment to illness. Both groups used coping skills with a medium-low frequency. Acceptance was the most used coping skill by patients and family/carers. No statistically significant differences were found between the control group and the experimental group. Conclusions: We observed that the quality of life and psychosocial adjustment to their illness was impacted in patients with PD and their family/carers, which could be addressed with psychoeducational interventions focused on developing their coping skills