Living with chronic illness scale: international validation of a new self-report measure in Parkinson's disease

Autores: Ambrosio Gutierrez, Leire; Portillo Vega, María Carmen; Rodríguez-Blázquez, C.; Rodriguez-Violante, M.; Martínez-Castrillo, J. C.; Campos Arillo, V.; Garretto, N. S.; Arakaki, T.; Serrano-Dueñas, M.; Alvarez, M.; Pedroso Ibáñez, I.; Carvajal Valcárcel, Ana; Martínez-Martín, P.
Título de la revista: NPJ PARKINSON'S DISEASE
ISSN: 2373-8057
Volumen: 2
Número: UNSP 16022
Fecha de publicación: 2016
Understanding how a person lives with a chronic illness, such as Parkinson's disease (PD), is necessary to provide individualized care and professionals role in person-centered care at clinical and community levels is paramount. The present study was aimed to analyze the psychometric properties of the Living with Chronic Illness-PD Scale (EC-PC) in a wide Spanish-speaking population with PD. International cross-sectional study with retest was carried out with 324 patients from four Latin American countries and Spain. Feasibility, acceptability, scaling assumptions, reliability, precision, and construct validity were tested. The study included 324 patients, with age (mean +/- s.d.) 66.67 +/- 10.68 years. None of the EC-PC items had missing values and all acceptability parameters fulfilled the standard criteria. Around two-third of the items (61.54%) met scaling assumptions standards. Concerning internal consistency, Cronbach's alpha values were 0.68-0.88; item-total correlation was 40.30, except for two items; item homogeneity index was 40.30, and inter-item correlation values 0.14-0.76. Intraclass correlation coefficient for EC-PC stability was 0.76 and standard error of measurement (s.e.m.) for precision was 8.60 (for a EC-PC s.d. = 18.57). EC-PC presented strong correlation with social support (r(S) = 0.61) and moderate correlation with life satisfaction (r(S) = 0.46). Weak and negligible correlations were found with the other scales.