Nuestros investigadores

María Arantzamendi Solabarrieta

Líneas de investigación
Programa ATLANTES: Dignidad humana, enfermedad avanzada y cuidados paliativos., Modelo de relación interpersonal entre la enfermera y la persona cuidada (mRIEP)

Publicaciones científicas más recientes (desde 2010)

Autores: Nerea Gallardo; Carvajal Valcarcel, A; Arantzamendi, María;
ISSN 1134-248X  Vol. 25  Nº 2  2018  págs. 105 - 113
La esclerosis lateral amiotrófica (ELA) afecta a diferentes aspectos de la vida de las personas y por ello, el objetivo de este estudio es conocer la calidad de vida relacionada con la salud (CVRS) de estos enfermos. Se realizó una revisión narrativa de los artículos de los últimos 10 años. La estrategia de búsqueda incluyó las palabras clave «esclerosis lateral amiotrófica» y «calidad de vida relacionada con la salud» y sus sinónimos traducidos al inglés y se aplicó en Cochrane, Cinahl, Pubmed, PsycInfo y Dialnet. Se incluyeron 9 artículos tras aplicar los criterios de selección. Se analizó el nivel de evidencia que generan los artículos utilizando como referencia las indicaciones de la «US Agency of Health Research and Quality» y posteriormente se analizaron los resultados de los estudios agrupándolos por áreas temáticas. Se identificaron un total de 3 áreas clave: la importancia de las necesidades emocionales, sociales y físicas de los pacientes con ELA; la presencia del cuidador y la CVRS de los enfermos; y los tipos de afrontamiento que pueden ayudar en la CVRS. La dimensión física es la que obtiene peores resultados de CVRS, pero dado que las dimensiones sociales y emocionales están también afectadas menos significativamente, la puntuación global de la CVRS permanece estable. La familia y el entorno del paciente surgen como aspecto clave a considerar en la atención a estos pacientes.
Autores: Nunziata Comoretto ; Larumbe, Ana María; Arantzamendi, María; et al.
ISSN 0969-9260  Vol. 25  Nº 5  2017  págs. 230 - 234
Patients with advanced cancer often continue to choose aggressive interventions and/or treatments up until the final stages of life. This clinical approach may compromise the preservation of a patient¿s quality of life, and secondarily, contributes to higher healthcare costs. Therefore, the ethics of enrolling terminal cancer patients in clinical trials which are testing new, aggressive chemotherapy agents requires careful discussion between the Oncology and the Palliative Care team. We present the case of a patient with stomach cancer admitted to a clinical trial at a very advanced stage of her disease. A number of clinical and ethical difficulties encountered by the PC team are discussed as well as possible solutions
Autores: Mujika, Agurtzane, (Autor de correspondencia); Arantzamendi, María; Lopez-Dicastillo, O; et al.
ISSN 0309-2402  Vol. 73  Nº 11  2017  págs. 2633 - 2641
Aim: To explore the views of current and ex¿smoker nurses on their role in supporting patients to stop smoking. Background: Long-term conditions are closely linked to harmful lifestyle behaviours, including smoking and overeating. Health professionals have an important role to play in promoting healthier lifestyles. It has been described that nurses¿ health behaviours may be a barrier to their health promotion practice. There is a need to gain further understanding on why nurses¿ health promotion activity is influenced by their own health behaviour. Design: A secondary analysis of qualitative data gathered in 2010 in the context of a project that aimed to develop a smoking cessation intervention for nurses. Eleven transcripts of semi-structured interviews conducted with nurses (current and ex¿smokers) working in one university hospital in Spain. Data were analysed using framework analysis. Findings: Nurses who smoked engaged in social justification in terms of social norms and work stress. Only nurses who had quit smoking were able to identify the negative feelings it generated and the effect that it had on their past health promotion practice. This was expressed by ex-smokers as an internal conflict that prevented them from supporting patients with their own habit. Conclusion: nurses who smoke may be inhibited as health promoters without being aware of it. Interventions that focus on helping these professionals deal with the challenges associated with these encounters
Autores: Aparicio, M.; Centeno, Carlos; Carrasco, JM; et al.
ISSN 1472-684X  Vol. 16  Nº 1  2017  págs. 47
Family members are involved in the care of palliative patients at home and therefore, should be viewed as important sources of information to help clinicians better understand the quality palliative care service patients receive. The objective of the study was to analyse what is valued most by family carers undergoing bereavement of a palliative care home service in order to identify factors of quality of care. Qualitative exploratory study based on documentary analysis. Content analysis of 77 gratitude documents received over 8 years by a palliative home service in Odivelas, near Lisbon (Portugal) was undertaken, through an inductive approach and using investigator triangulation. Frequency of distinct categories was quantitatively defined. Results: Three different content categories emerged from the analysis: a) Recognition of the care received and the value of particular aspects of care within recognised difficult situations included aspects such as kindness, listening, relationships established (63/77 documents)¿ b) Family recognition of the achievements of the palliative care team (29/77) indicated as relief from suffering for the patient and family, opportunity of dying at home, help in facing difficult situations, improvement in quality of life and wellbeing, and feeling of serenity during bereavement¿ c) Messages of support (45/77) related to the need of resources provided.
Autores: Centeno, Carlos; Carole Robinson; Noguera, Antonio Luís; et al.
ISSN 1472-6920  Vol. 17  Nº 1  2017  págs. 257
Medical Schools are challenged to improve PC education and to find ways to introduce and nurture attitudes and behaviours such as empathy, patient-centred care and wholistic care. This paper describes the curriculum and evaluation results of a unique course centred on PC decision-making but aimed at introducing these other important competencies as well. Methods: The 20 hour-long optional course, presented in an art museum, combined different learning methods, including reflections on art, case studies, didactic sessions, personal experiences of faculty, reflective trigger videos and group discussions. A mixed methods approach was used to evaluate the course, including a) a post-course reflective exercise; b) a standardized evaluation form used by the University for all courses; and c) a focus group. Results: 21 students (2nd to 6th years) participated. The course was rated highly by the students. Their understanding of palliative care changed and misconceptions were dispelled. They came to appreciate the multifaceted nature of decision-making in the palliative care setting and the need to individualize care plans. Moreover, the course resulted in a re-conceptualization of relationships with patients and families, as well as their role as future physicians. Conclusions: PC decision-making therefore, augmented by the visual arts, can serve as a vehicle to address several competencies, including the introduction of competencies related to being patient-centred and empathic.
Autores: Arantzamendi, María; Centeno, Carlos;
ISSN 1352-2779  Vol. 24  Nº 2  2017  págs. 72 - 74
The term intangible describes something that has no physical presence and that cannot be touched ¿love and truth, for example, are both intangible. To a certain extent, many of the values of palliative care are also intangible. In this article, we discuss these facets of palliative care along with the nature of advanced illness and the essence of caring. We also reflect on how these intangible values are perceived, both by those who receive palliative care and those who provide it. Finally, we analyse the difficulty in conveying the message of palliative care, to society and to other professionals, precisely because of the intangible nature of what we wish to transmit.
Autores: Arantzamendi, María; Lopez-Dicastillo, O; Robinson, C.; et al.
ISSN 1134-248X  Vol. 24  Nº 4  2017  págs. 219 - 226
La utilización de la investigación cualitativa (IC) en Cuidados Paliativos (CP) está en auge, quizás porque tienen muchos aspectos en común. Ambos se centran en la persona y su entorno y están especialmente interesados en la experiencia humana. El objetivo de este artículo es presentar algunos de los enfoques más frecuentemente utilizados en las ciencias de la salud, proporcionando ejemplos de estudios de CP. Esto con el fin de ayudar a quienes se están iniciando en la IC a explorar los posibles enfoques que podrían utilizar para realizar investigación en CP. A través del ejercicio ¿armchair walkthrough¿, se concretan los aspectos clave de un proyecto de investigación, considerando los distintos enfoques: la etnografía, la fenomenología, la narrativa y la teoría fundamentada. Familiarizarse con la metodología cualitativa y algunos de los enfoques ayudará a los profesionales de CP a plantear nuevas preguntas y retos con investigación rigurosa. Palabras clave: Investigación cualitativa, etnografía, fenomenología, narrativa, teoría fundamentada.
Autores: Martínez, Marina; Arantzamendi, María; Belar, A.; et al.
ISSN 0269-2163  Vol. 31  Nº 6  2016  págs. 492 - 509
Background: Dignity therapy is psychotherapy to relieve psychological and existential distress in patients at the end of life. Little is known about its effect. Aim: To analyse the outcomes of dignity therapy in patients with advanced life-threatening diseases. Design: Systematic review was conducted. Three authors extracted data of the articles and evaluated quality using Critical Appraisal Skills Programme. Data were synthesized, considering study objectives. Data sources: PubMed, CINAHL, Cochrane Library and PsycINFO. The years searched were 2002 (year of dignity therapy development) to January 2016. `Dignity therapy¿ was used as search term. Studies with patients with advanced life-threatening diseases were included. Results: Of 121 studies, 28 were included. Quality of studies is high. Results were grouped into effectiveness, satisfaction, suitability and feasibility, and adaptability to different diseases and cultures. Two of five randomized control trials applied dignity therapy to patients with high levels of baseline psychological distress. One showed statistically significant decrease on patients¿ anxiety and depression scores over time. The other showed statistical decrease on anxiety scores pre¿post dignity therapy, not on depression. Nonrandomized studies suggested statistically significant improvements in existential and psychosocial measurements. Patients, relatives and professionals perceived it improved end-of-life experience. Conclusion: Evidence suggests that dignity therapy is beneficial. One randomized controlled trial with patients with high levels of psychological distress shows DT efficacy in anxiety and depression scores. Other design studies report beneficial outcomes in terms of end-of-life experience. Further research should understand how dignity therapy functions to establish a means for measuring its impact and assessing whether high level of distress patients can benefit most from this therapy.
Autores: García, Noelia; Carvajal Valcarcel, A; Saracíbar-Razquin, M; et al.
ISSN 0961-5423  Vol. 25  Nº 4  2016  págs. 551 - 569
The aim of the study was to understand the experience of people living with advanced-stage cancer through literature. The search included The Cochrane Library, PubMed, PsycInfo, CINAHL and Cuiden. Thirteen studies were included. A qualitative meta-synthesis was conducted. One thread emerged from the thematic synthesis: the desire to live as normally as possible, despite being aware of the proximity of death. Three themes also emerged: "a process that is unique" with its four sub-themes; "support network" and "health context," each of them having two sub-themes. This study concludes that living with advanced-stage cancer is a unique and complex process which has both positive and negative aspects. The review provides a comprehensive view of the experience, which considers the importance of the support network and the health context in which the person lives. In this study, "normalcy" is the adjustment to the new reality and living as closely as possible to the way one lived before the disease, while developing a new relationship with being finite and death. A better understanding of the experience of living with advanced-stage cancer will help health professionals to identify the needs of the patients in order to plan individual, high-quality care.
Autores: García, Noelia; Errasti-Ibarrondo, B; Arantzamendi, María;
ISSN 1134-248X  Vol. 23  Nº 3  2016  págs. 141 - 152
Noelia García-Rueda; Begoña Errasti-Ibarrondo; María Arantzamendi Solabarrieta. La relación enfermera-paciente con enfermedad avanzada y terminal: revisión bibliográfica y análisis conceptual. Medicina Paliativa. objetivo: Explorar y comprender el significado de la relación enfermera-paciente con enfermedad avanzada y terminal y sus beneficios a través de la literatura disponible. Método Revisión de la evidencia mediante búsquedas sistematizadas en las bases de datos Cochrane Library Plus, PubMed, UNIKA, PsycInfo y CINAHL, y mediante la técnica bola de nieve. La estrategia de búsqueda de palabras clave se dividió en 3 grandes bloques (relación enfermera-paciente, enfermería y persona cuidada con enfermedad avanzada y terminal). Tras la revisión bibliográfica se realizó un análisis conceptual de la bibliografía identificada para explorar el significado de los términos empleados, las diferencias y similitudes y las características que se le atribuyen a la relación enfermera-paciente en la literatura, así como sus beneficios y los requisitos previos para establecerla. Resultados Se incluyeron en el estudio 10 artículos y a través del análisis conceptual se exploró el significado de los términos empleados para aludir a la relación enfermera-paciente. Asimismo se identificaron las principales características que se le atribuyen a dicha relación: comunicación, confianza, comprensión y presencia, además de empatía y compasión.
Autores: Arantzamendi, María; Belar, A.; Martínez, Marina;
ISSN 1751-4258  Vol. 10  Nº 4  2016  págs. 324 - 329
In recent years, there has been a growing interest in promoting dignity in care, and specific interventions have been developed to include it at the end of life. The patient dignity question (PDQ) is a recent, novel and simple intervention that healthcare professionals can implement; however, little is known about its impact. This scoping review aims to examine and map out the PDQ literature. Recent findings Studies suggest that patients, families and professionals have a positive view of the PDQ in that it helps to get to know patients and provide them with the best care possible. The PDQ seems to promote an environment of care focused on the person and the prevalence of more human aspects in clinical encounters between professionals and patients. This is especially so in situations in which human aspects of the healthcare relationship at baseline received lower marks. Healthcare professionals thought that performing the PDQ to determine what is important to the patient is a feasible and effective exercise. Summary The published literature suggests that PDQ is a beneficial intervention for approaching and getting to know a patient as a person. More studies are needed that measure pre¿post-PDQ changes and that demonstrate their impact on patient care.
Autores: Errasti-Ibarrondo, B; Pérez, María de las Mercedes; Carrasco, JM; et al.
ISSN 0029-6554  Vol. 63  Nº 3  2015  págs. 255-268
Errasti-Ibarrondo, B; Pérez, M; Carrasco, J.M; Lama, M; Zaragoza, A; Arantzamendi, M. Essential elements of the relationship between the nurse and the person with advanced and terminal cancer: A meta-ethnography. Nursing Outlook DOI: 10.1016/j.outlook.2014.12.001 Indexada en: MEDLINE, CINAHL and the Journal Citation Reports published by Thomson Reuters. Área: Enfermería-SSCI Índice de Impacto (JCR Science 2014): 2.359 Posición de la revista en el área: 3/101 Cuartil: 1
Autores: Rullan; Carvajal Valcarcel, A; Núñez, Jorge María; et al.
ISSN 0885-3924  Vol. 50  Nº 6  2015  págs. 874-81
The Spanish version of the PDI showed adequate psychometric properties when tested with advanced cancer patients. This research provides a three-factor alternative in Spanish to the PDI.
Autores: Jesús Martin; Carvajal Valcarcel, A; Arantzamendi, María;
ISSN 1137-6627  Vol. 38  Nº 3  2015  págs. 439-452
Una cuarta parte de las personas con insuficiencia cardíaca se encuentran en una etapa avanzada de la enfermedad durante la cual experimentan numerosos síntomas, comunes y angustiantes, que impactan en todas las esferas de la persona. En este contexto, la valoración y el seguimiento clínico de los pacientes se debe realizar de manera frecuente. A través de esta revisión, se pretende identificar cuáles son los instrumentos que se utilizan en la valoración de enfermos con insuficiencia cardíaca avanzada. Para este trabajo se ha considerado instrumento a cualquier tipo de cuestionario, escala, test o prueba funcional, que se utilice para valorar algún aspecto de estos enfermos. Se han identificado 49 herramientas que permiten valorar síntomas, aspectos psicológicos, cognitivos, espirituales y de calidad de vida. La información proporcionada sobre los instrumentos más utilizados y su disponibilidad y aplicabilidad constituye un primer paso para su posible integración en la práctica clínica diaria. De este modo, los profesionales que trabajan con estos enfermos, podrán mejorar la identificación de necesidades específicas, posibilitando el posterior manejo de las mismas y su seguimiento. Palabras clave. Insuficiencia Cardíaca. Valoración. Cuestionario. Escala.
Autores: Carvajal Valcarcel, A; Teso-Vega, N.; Arantzamendi, María;
ISSN 1688-8375  Vol. 4  Nº 2  2015  págs. 10 - 11
Titulo completo de la Revista: Enfermería: Cuidados Humanizados. Su ISSN es: 1688-8375.
Autores: Errasti-Ibarrondo, B; Martínez, Marina; Carvajal Valcarcel, A; et al.
ISSN 0328-8390  Vol. 25  Nº 84  2014  págs. 243-256
Todos los modelos incluidos en esta revisión proporcionan a los profesionales de la salud un punto de partida para la reflexión e incorporación de prácticas que traten de preservar la dignidad social de los pacientes con enfermedad terminal. Uno de los modelos identificados ha sido aplicado a la práctica clínica con resultados positivos
Autores: Ballesteros M.; Centeno, Carlos; Arantzamendi, María;
ISSN 0260-6917  Vol. 34  Nº 6  2014  págs. e1-6
Autores: Centeno, Carlos; Ballesteros, M.; Carrasco, JM; et al.
ISSN 2045-435X  Vol. 6  Nº 1  2014  págs. 128-34
The subject of PC turns out to be very important to students, who almost unanimously evaluated their experience positively and highlighted the benefits of attending a PC course. Students especially reported being surprised by the humane and holistic features of the course, and they found that what they learned in the course is applicable to all patients and prepares them to work better as doctors. Participants recommend the course for all undergraduate students as a core component of the curricula.
Autores: Errasti-Ibarrondo, B; Arantzamendi, María; Canga, N;
ISSN 1137-6627  Vol. 35  Nº 2  2012  págs. 269 - 283
Nursing is a profession that has suffered from public stereotyping for a long time. It has been viewed historically as a female profession, under the orders of doctors and without its own field of competence. Major changes have occurred in the discipline over the last decade that directly affect the profession. As a result, this review of the literature has tried to identify the image of nursing held by the population, the prevailing stereotypes related to it, and what the public considers that nurses do. Eight categories emerged from the thematic analysis that can help in explaining the view that society has of nursing and the evolution it has undergone. It seems that the public is predominantly ignorant of the essence and focus of the discipline, which is none other than care of the person, family or community. It is also a little known profession as society does not fully acknowledge that nurses have their own field of competence, autonomy and independence. There is still a tendency to consider nursing as a profession inferior to medicine, closely related to "tasks" and there is trust in its carrying out those activities that have been traditionally associated with it. However, it is coming to be perceived as a profession that is less related to femininity and that involves greater preparation than in the past.
Autores: Errasti-Ibarrondo, B; Arantzamendi, María; Canga, N;
ISSN 1137-6627  Vol. 35  Nº 2  2012  págs. 269-283
Autores: Portillo, María Carmen; Senosiáin, Juana María; Arantzamendi, María; et al.
ISSN 2013-5246  Vol. 36  Nº 1  2012  págs. 31 - 38
ICS Introducción: En la bibliografía hay un vacío relacionado con la perspectiva holística del proceso de integración de la enfermedad de Parkinson en las vidas de pacientes y familiares. Objetivo: Explorar el proceso de convivencia con la enfermedad de Parkinson de pacientes y familiares, así como los factores y los mecanismos que lo favorecen o inhiben. Método: El proyecto ReNACE es un proyecto con metodología combinada, multicéntrico y multidisciplinario, de 3 años de duración, que consta de 2 fases (cualitativa y cuantitativa), realizado en la Clínica Universidad de Navarra, un centro de Salud del Servicio Navarro de Salud-Osasunbidea y la Asociación Navarra de Parkinson. Se presentan resultados preliminares de la Fase I Cualitativa. Se han recogido datos con entrevistas semiestructuradas, hojas sociodemográficas y escalas (estadio Parkinson). Se ha realizado un análisis de contenido comparativo (programa NVivo9) y un análisis estadístico (SPSS 15.0). Resultados: Participaron 15 pacientes con enfermedad de Parkinson y 16 familiares. Su mediana y rango intercuartil de edad eran de 73 (65¿76,25) y 65 (59,5¿74) años, respectivamente. En el proceso de adaptación al Parkinson, se destacan dos etapas dinámicas: 1) etapa extraordinaria, y 2) etapa de normalidad. Los principales factores y mecanismos que influían en la convivencia con el Parkinson eran: las estrategias de afrontamiento, el apoyo familiar, las redes personales y sociales, los recursos disponibles, así como la educ
Autores: Arantzamendi, María; Addington-Hall, J.; Saracíbar-Razquin, M; et al.
ISSN 1357-6321  Vol. 18  Nº 12  2012  págs. 597-605
ICS Objective: To describe Spanish nurses' preparedness to care for hospitalised terminally ill patients and how this translates into care delivery. Methods: An exploratory, sequential mixed methods study with two stages. Stage I used unstructured observations of 22 hospital nurses over 235 hours to understand their daily reality, followed by semi-structured interviews with 21 nurses to elicit their perspectives. Stage 2 was a regional survey (65% response rate) concerned with hospital nurses' opinions of caring for terminally ill patients and their perceived competence. Results: The nurses felt competent to provide physical but not emotional care for terminally ill patients. They reported that care could be improved, particularly through providing more emotional care. This coincided with an observed focus on physical care. The nurses reported a lack of support in caring for terminally ill patients and wanted more education on emotional issues and dealing with their own feelings. Conclusion: There is a need for an integrative approach in Spain that combines an educational programme with a supportive environment, focusing on developing nurses' competence to deliver emotional care and deal with their own feelings. Promoting a supportive environment might enable nurses to change their behaviour when caring for terminally ill patients and deal with patients' emotional as well as physical needs.
Autores: Corchón, Silvia; Watson, R.; Arantzamendi, María; et al.
Revista: Journal of Clinical Nursing
ISSN 0962-1067  Vol. 19  Nº 1-2  2010  págs. 217 - 226
Autores: Centeno, Carlos; Arantzamendi, María; Rodríguez, Belén; et al.
ISSN 0825-8597  Vol. 3  Nº 26  2010  págs. 167 - 175
Studies on the effectiveness and efficiency of palliative care (PC) services that use a methodology similar to that used by studies in other medical specialties face serious limitations, since the goals of PC are substantially different. Qualitative research methods can make an important contribution to our understanding of the features of palliative care (PC) that are most relevant to patients and their relatives. The goal of this study was to understand the reasons behind the gratitude shown in letters from bereaved relatives sent to two PC units, one in Spain and one in Portugal. A thematic analysis of the content of the letters was independently carried out by three researchers, who later collaborated to write up the results. Relatives appeared grateful primarily for the humane attitude, professional treatment, and emotional support that their loved ones received from the PC team; they thanked the team for creating a special atmosphere and offering holistic care, and they talked about the contrast between PC and other forms of care. The unsolicited gratitude expressed in their letters constitutes a valid and particularly rich source of information about the contribution that a PC team can make.
Autores: Garcia-Vivar, C; Arantzamendi, María; Lopez-Dicastillo, O; et al.
Revista: Index de Enfermería
ISSN 1132-1296  Vol. 19  Nº 4  2010  págs. 283 - 288
Autores: Lopez-Dicastillo, O; Corchón, Silvia; Arantzamendi, María;
Libro:  Libro de ponencias del XV Encuentro Internacional de Investigación en Enfermería
2011  págs. 183 - 184
Autores: Arantzamendi, María; López-Dicastillo O; Garcia-Vivar, C;
Autores: Serrano, Inmaculada; Senosiáin, Juana María; Lopez-Dicastillo, O; et al.
Autores: Garcia-Vivar, C; Portillo, María Carmen; Arantzamendi, María; et al.