Nuestros investigadores

María Arantzamendi Solabarrieta

Líneas de investigación
Programa ATLANTES: Dignidad humana, enfermedad avanzada y cuidados paliativos., Modelo de relación interpersonal entre la enfermera y la persona cuidada (mRIEP), Investigación cualitativa
Índice H
10, (Scopus, 09/12/2020)
18, (Google Scholar, 09/12/2020)
10, (WoS, 16/02/2021)

Publicaciones científicas más recientes (desde 2010)

Autores: Belar Beitia, Alazne (Autor de correspondencia); Arantzamendi Solabarrieta, María; Payne, S.; et al.
ISSN 0269-2163  Vol. 35  Nº 2  2021  págs. 295 -314
Background: Palliative sedation is the monitored use of medications intended to relieve refractory suffering. The assessment of palliative sedation has been focused on the assess of the level of consciousness but a more comprehensive approach to assessment is needed. Aim: To understand how the potential effects and possible adverse events of palliative sedation in Palliative Care patients are measured. Design: Integrative review of most recent empirical research. Data sources: Cochrane Library, Embase, Medline, PubMed, and CINAHL were searched (2010-2020) using the terms sedation, palliative care, terminal care, assessment. Limits included studies in English and adults. Inclusion criteria were: scientific assessment papers, effects and complications of palliative sedation; patients with incurable illness. Results: Out of 588 titles, 26 fulfilled inclusion criteria. The Discomfort Scale-Dementia of Alzheimer Type and Patient Comfort Score were used to assess comfort. The Richmond Agitation-Sedation Scale and The Ramsay Sedation Scale are the most used to measure its effect. Refractory symptoms were assessed through multi-symptom or specific scales; except for psychological or existential distress. Delirium was assessed using the Memorial Delirium Assessment Scale and pain through the Critical Care Pain Observation Tool. The use of technical approaches to monitor effects is upcoming. There is lack of measurement of possible adverse events and variability in timing measurement. Conclusions: There are palliative care validated instruments to assess the sedation effect but this review shows the need for a more standardized approach when assessing it. Instruments should be used within an experienced and trained expert, providing a holistic assessment.
Autores: Arantzamendi Solabarrieta, María (Autor de correspondencia); Sapeta, P.; Collete, N.; et al.
ISSN 2689-2820  Vol. 2  Nº 1  2021  págs. 34 - 39
Emotional exhaustion is a problem many palliative care professionals face during their activity. Art therapy is emotionally beneficial for palliative patients that experience suffering, but its impact on professionals¿ experience of suffering has not been researched. Aim:To examine the immediate reactions of professionals after an art therapy workshop focused on personal self-care, also considering previously used coping strategies. Design: A four-hour art therapy workshop was designed including a generic qualitative study of participants. Participants were palliative care professionals and their reactions were examined using an ad hoc questionnaire with open-ended questions. Descriptive analysis of quantitative variables and thematic analysis of open-ended questions were conducted. Results: Seventeen professionals participated voluntarily. They rated the workshop positively, using words like ¿calm¿ and ¿relaxation¿ to express the effects of the workshop, which they considered therapeutic and a source of self-awareness. For some, it allowed them to release emotions; for others, it enabled introspection and opened up a more elaborated emotional response. They thought artistic expression would be useful for their colleagues, or even for their own personal development. In the workshop, professionals opened up and explained how they face intense moments on a day-to-day basis: how they approach the situation, or how they try to control their surroundings; how they disconnect/dista
Autores: Belar Beitia, Alazne; Arantzamendi Solabarrieta, María (Autor de correspondencia); Santesteban, Y.; et al.
ISSN 2045-435X  2020 
OBJECTIVE:Cultural backgrounds and values have a decisive impact on the phenomenon of the wish to die (WTD), and examination of this in Mediterranean countries is in its early stages. The objectives of this study were to establish the prevalence of WTD and to characterise this phenomenon in our cultural context. METHODS:A cross-sectional study with consecutive advanced inpatients was conducted. Data about WTD (Assessing Frequency & Extent of Desire to Die (AFFED) interview) and anxiety and depression (Edmonton Symptom Assessment System-revised (ESAS-r)) were collected through two face-to-face clinical encounters. Data were analysed with descriptive statistics, ¿2 and analysis of variance. RESULTS:201 patients participated and 165 (82%) completed both interviews. Prevalence of WTD was 18% (36/201) in the first interview and 16% (26/165) in the second interview (p=0.25). After the first interview, no changes in depression (p=0.60) or anxiety (p=0.90) were detected. The AFFED shows different experiences within WTD: 11% of patients reported a sporadic experience, while 7% described a persistent experience. Thinking about hastening death (HD) appeared in 8 (22%) out of 36 patients with WTD: 5 (14%) out of 36 patients considered this hypothetically but would never take action, while 3 (8%) out of 36 patients had a more structured idea about HD. In this study, no relation was detected between HD and frequency of the appearance of WTD (p=0.12). CONCLUSIONS:One in five patients had WTD. Our findings suggest the existence of different experiences within the same phenomenon, defined according to frequency of appearance and intention to hasten death. A linguistically grounded model is proposed, differentiating the experiences of the 'wish' or 'desire' to die, with or without HD ideation.
Autores: Pergolizzi, D.; Crespo, I.; Balaguer, A.; et al.
Revista: BMJ OPEN
ISSN 2044-6055  Vol. 10  Nº 2  2020  págs. e034413
We aim to design and evaluate a proactive and systematic method for the needs assessment using quality guidelines for developing complex interventions. This will involve patients, their relatives and healthcare professionals in all phases of the study and its communication to offer clinical practice a reliable approach to address the palliative needs of patients. Methods and analysis To design and assess the feasibility of an evidence-based, proactive and systematic Multidimensional needs Assessment in Palliative care (MAP) as a semistructured clinical interview guide for initial palliative care encounter/s in patients with advanced cancer. This is a two-phase multisite project conducted over 36 months between May 2019 and May 2022. Phase I includes a systematic review, discussions with stakeholders and Delphi consensus. The evidence gathered from phase I will be the basis for the initial versions of the MAP, then submitted to Delphi consensus to develop a preliminary guide of the MAP for the training of clinicians in the feasibility phase. Phase II is a mixed-methods multicenter feasibility study that will assess the MAP¿s acceptability, participation, practicality, adaptation and implementation. A nested qualitA nested qualitative study preliminary clues about the benefits and barriers of the MAP. The evidence gathered from phase II will build a MAP user guide and educational programme for use in clinical practice.
Autores: Arantzamendi Solabarrieta, María (Autor de correspondencia); García Rueda, Noelia; Carvajal Valcárcel, Ana; et al.
ISSN 1049-7323  Vol. 30  Nº 8  2020  págs. 1143 - 1155
Abstract Literature suggests that it is possible to live well with advanced cancer but little is known about the process. In this article, we present a secondary analysis of experiences of living with advanced cancer (n=22) that refines the theory of ¿Living Well with Chronic Illness¿ for a different context and population. The refined theory explains the experience of living well with advanced cancer illuminating a five phase iterative process: struggling, accepting, living with advanced cancer, sharing the illness experience, and reconstructing life. These five phases revolve around the core concept of Awareness of Dying, which varied from awareness of the possibility of dying, to accepting the possibility of dying, to acceptance that ¿I am dying.¿ Awareness of Dying led to a focus on living well with advanced cancer and movement towards living a life rather than living an illness.
Autores: Trinchete Reigada, Carla Manuela; Arantzamendi Solabarrieta, María; Centeno Cortés, Carlos
ISSN 1472-684X  Vol. 19  Nº 1  2020  págs. 88
Despite 50 years of modern palliative care (PC), a misunderstanding of its purpose persists. The concept ¿Palliative Care¿ can be linked to feelings of fear, anxiety and death, instead of compassion, support or appropriate care. Society is still afraid to speak its name, and specialized units are identified as ¿places of death¿ as opposed to ¿places of life¿ meant to treat suffering. This issue is prohibitive to the implementation and development of PC policies worldwide. It is imperative to identify what message PC professionals are relaying to patients and other health care specialists and how that message may condition understandings of the right to access PC. Methods A qualitative study, employing focused ethnography and participant observation (PO) of the daily interaction of PC professionals with patients and family members in three different PC services. Two researchers independently conducted a thematic analysis, followed by member checking with participants. Results A total of 242 hours of participant observation revealed the following messages sent by PC professionals in their daily interaction with patients and families: i) We are focused on your wellbeing; ii) You matter: we want to get to know you; iii) Your family is important to us. Conclusion The complexity of PC discourses contributes to the difficulty of identifying a clear universal message between PC professionals, patients and families. The PC professionals observed transmit a simple message focused on their actions rather than their identity, which may perpetuate some social/cultural misunderstandings of PC. It seems there is a common culture, based on the same values and attitudes, within the messages that PC professionals transmit to patients and their families. PC teams are characterised by their availability.
Autores: Aparicio, M., (Autor de correspondencia); Centeno Cortés, Carlos; Robinson, C.; et al.
ISSN 0966-0429  Vol. 27  Nº 2  2019  págs. 286 - 300
AimTo synthesize existing evidence regarding gratitude in health care relationships, with a specific focus on expressions of gratitude from patients and their families to health professionals, including their meaning and impact. BackgroundStudying expressions of gratitude by patients and their families within the scope of health care is an innovative way of identifying the most valuable elements of care. EvaluationA scoping review of three data bases was conducted using the terms gratitude and health professionals (1984-2016). Data were extracted, analysed thematically and synthesized. Key IssuesA total of 32 publications were identified, around half being opinions or reflections. Thematic analysis resulted in the identification of three themes: the characteristics of expressions of gratitude, the focus of expressions of gratitude and the effect of gratitude on health professionals. ConclusionsExpressions of gratitude by patients and their families may have an important personal and professional effect on health professionals that is long lasting. A systematic study of its effect is needed. Implications for Nursing ManagementGratitude from patients and their families may contribute to motivation and retention among health professionals. Gratitude can be nurtured and is associated with a healthy work environment.
Autores: Aparicio Pérez, María Dolores (Autor de correspondencia); Centeno Cortés, Carlos; Arantzamendi Solabarrieta, María
ISSN 1472-684X  Vol. 18  Nº 1  2019  págs. 28
Background: In palliative care (PC) patients and relatives (P/R) often show their gratitude to the healthcare professionals (HP) who care for them. HP appreciate these displays of gratitude, although the impact of the same has not been examined in detail. Publications analysed tell personal experiences in which HP say that displays of gratitude create sensations of well-being, pride and increased motivation to carry on caring. No systematic examination in PC was found. These aspects related to gratitude may be important in the field of PC, where there is constant exposure to suffering and the preoccupation which arises from wanting to help HP to go on with their work, but it needs closer study and systemisation. The purpose of this study is to understand the significance and the role of the gratitude received from P/R for palliative care health professionals (PCHP). Methods: A suitable mixed method will be used. The first phase will be quantitative and will consist of a survey, piloted by experts, whose goal is to explore the current situation in Spain as regards displays of gratitude received by HP at PC services. It will be sent by e-mail. The results from this part will be incorporated into the second part which will be qualitative and whose goal is to understand the significance of the experience of receiving displays of gratitude from the perspective of PCHP, using a phenomenological approach. Interviews will be undertaken amongst PCHP. The interview guide will be designed after taking the survey results into account. The project has been granted ethical approval. Discussion: These results are set to provide a key contribution within the context of the growing preoccupation on how to care for HP, how to ensure retention and keep them from resigning, as well as preventing burnout, emotional fatigue and boosting their resilience. In order to do this, it is both interesting and ground breaking, to analyse the repercussion of spontaneous gratitude shown by P/R towards PCHP, to see if this is a useful resource to reduce these problems and to encourage the greater presence of dignity and humanisation, for both those receiving care and for those providing it. This gratitude may be one of these strategies.
Autores: Errasti Ibarrondo, María Begoña (Autor de correspondencia); Jordán, J. A.; Pérez Diez del Corral, Mercedes; et al.
ISSN 1320-7881  Vol. 26  Nº 1  2019  págs. e12259
Phenomenology of practice is a useful, rigorous way of deeply understanding human phenomena. Therefore, it allows research to be conducted into nursing's most sensitive and decisive aspects. While it is a widely used research approach and methodology in nursing, it is seldom addressed and made use of in its practical and applied value. This article aimed to approach the global outlook of van Manen's hermeneutic¿phenomenological method to better understand its theoretical background and to address and support the contribution this method can make to nursing, if rigorously applied. For a professional discipline like nursing, van Manen's approach is especially interesting because, in addition to contributing to the body of knowledge of nursing, it provides a special kind of knowledge that allows nurses to act in a more reflective manner, and with tact and skill, in certain situations and relationships that arise in their daily practice. A more in¿depth understanding of this research methodology may help nurse¿researchers make good use of it and also harness knowledge derived from this type of research. This comes as a result of assuming that phenomenological texts, the final product of the research, have tremendous educational potential for people who read them carefully
Autores: Noguera Tejedor, Antonio Luís; Arantzamendi Solabarrieta, María; López Fidalgo, Jesús Fernando; et al.
ISSN 1660-4601  Vol. 16  Nº 24  2019 
Quality medical education, centred on patient¿s needs, is crucial to develop the health professionals that our society requires. Research suggests a strong contribution of palliative care education to professionalism. The aim of this study was to design and validate a self-report inventory to measure student¿s professional development. Method: Sequential exploratory strategy mix method. Inventory was built based on the themes that emerged from the analysis of four qualitative studies about nurse and medical students¿ perceptions related to palliative care teaching interventions (Ballesteros et al 2014, Centeno et al 2014&2017, Rojí et al 2017). The structure and psychometrics of the inventory obtained has been tested in two different surveys with two different groups of medical students. Inventory reliability and construct validity were tested in the first survey group. To verify the inventory structure a confirmatory factor analysis was performed in a second survey group. Results: the has 33-items and seven dimensions: holistic approach, caring for and understanding the patient, personal growth, teamwork, decision-making, patient evaluation, and being a health care professional. Cronbach¿s-alpha was 0.73-0,84 in all seven domains, ICC: 0.95. The confirmatory factor analysis CFI was 1 with a Standardized Root Mean Square index 0,088(SRMR) and obtained a 0,99 goodness-of-fit R-square coefficient. Conclusions: This inventory is valid to assess student¿s professional development
Autores: Belar Beitia, Alazne; Arantzamendi Solabarrieta, María (Autor de correspondencia); Rodríguez-Núñez, A.; et al.
ISSN 0885-3924  Vol. 57  Nº 3  2019  págs. 627 - 634
CONTEXT: Demoralization is a state of existential distress in patients with advanced illness, typically with coping difficulties, feelings of loss of sense, and purpose in life and despair, among other things. The New Demoralization Scale (DS-II) is an evaluation tool for this syndrome, which has recently been reformulated on a shorter scale. OBJECTIVES: The objective of this study was to obtain a Spanish version of the DS-II and to assess its psychometric properties in advanced cancer patients in Spain and a number of Latin American countries. METHODS: Following a translation-back translation process, a validation study and a confirmatory analysis using structural equation models with their corresponding latent constructs were undertaken. Patients completed the DS-II in Spanish (DS-II (es)), the Hospital Anxiety and Depression Scale, and the Edmonton Symptom Assessment System-revised. Reliability was studied according to internal consistency; construct validity and concurrent validity with the Hospital Anxiety and Depression Scale and the Edmonton Symptom Assessment System-revised; discriminant validity using the Karnofsky Performance Status scale; and feasibility, with response ratio and required time. Cutoff points were established, and sensitivity and specificity were studied. RESULTS: The DS-II (es) was obtained. One hundred fifty patients completed the validation study. The confirmatory analysis showed coherence, and all items correlated positively with their subscales and with the overall scale. Cronbach's alpha for the DS-II (es) was 0.88, for the sense and purpose subscale 0.83, and for the coping ability 0.79. Demoralization correlated significantly with emotional distress (rho = 0.73, P < 0.001). The tool distinguished between patients with diverse functional levels (rho = -0.319, P = 0.001). Cutoff points at 10 and 20 out of 32 were established. The scale showed high sensitivity (81.97%) and specificity (80.90%). The prevalence of demoralization was 33% in our sample. CONCLUSION: The Spanish version of the new Kissane DS-II demoralization scale has shown to be valid, reliable, and feasible with adequate psychometric properties.
Autores: Trinchete Reigada, Carla Manuela; Centeno Cortés, Carlos; Arantzamendi Solabarrieta, María
ISSN 0269-2163  Vol. 33  Nº 1  2019  págs. 125
Autores: Gallardo, N., (Autor de correspondencia); Carvajal Valcárcel, Ana; Arantzamendi Solabarrieta, María
ISSN 1134-248X  Vol. 25  Nº 2  2018  págs. 105 - 113
La esclerosis lateral amiotrófica (ELA) afecta a diferentes aspectos de la vida de las personas y por ello, el objetivo de este estudio es conocer la calidad de vida relacionada con la salud (CVRS) de estos enfermos. Se realizó una revisión narrativa de los artículos de los últimos 10 años. La estrategia de búsqueda incluyó las palabras clave «esclerosis lateral amiotrófica» y «calidad de vida relacionada con la salud» y sus sinónimos traducidos al inglés y se aplicó en Cochrane, Cinahl, Pubmed, PsycInfo y Dialnet. Se incluyeron 9 artículos tras aplicar los criterios de selección. Se analizó el nivel de evidencia que generan los artículos utilizando como referencia las indicaciones de la «US Agency of Health Research and Quality» y posteriormente se analizaron los resultados de los estudios agrupándolos por áreas temáticas. Se identificaron un total de 3 áreas clave: la importancia de las necesidades emocionales, sociales y físicas de los pacientes con ELA; la presencia del cuidador y la CVRS de los enfermos; y los tipos de afrontamiento que pueden ayudar en la CVRS. La dimensión física es la que obtiene peores resultados de CVRS, pero dado que las dimensiones sociales y emocionales están también afectadas menos significativamente, la puntuación global de la CVRS permanece estable. La familia y el entorno del paciente surgen como aspecto clave a considerar en la atención a estos pacientes.
Autores: Rullán, M., (Autor de correspondencia); Arantzamendi Solabarrieta, María; Carvajal Valcárcel, Ana; et al.
ISSN 1478-9523  Vol. 16  Nº 1  2018  págs. 73-79
ICS ATLANTES The PDI has intrinsic therapeutic value and is useful in clinical practice, and it is also a way of examining issues related to dignity and the meaning of life within the context of advanced-stage illness. There is a need for studies that examine patient experiences through a PDI-based intervie
Autores: Errasti Ibarrondo, María Begoña; Jordán, J. A.; Pérez Diez del Corral, Mercedes; et al.
ISSN 0309-2402  Vol. 74  Nº 7  2018  págs. 1723 - 1734
Aims To offer a complete outlook in a readable easy way of van Manen's hermeneutic¿phenomenological method to nurses interested in undertaking phenomenological research. Background Phenomenology, as research methodology, involves a certain degree of complexity. It is difficult to identify a single article or author which sets out the didactic guidelines that specifically guide research of this kind. In this context, the theoretical¿practical view of Max van Manen's Phenomenology of Practice may be seen as a rigorous guide and directive on which researchers may find support to undertake phenomenological research. Design Discussion paper. Data sources This discussion paper is based on our own experiences and supported by literature and theory. Our central sources of data have been the books and writings of Max van Manen and his website ¿Phenomenologyonline¿. Implications for nursing The principal methods of the hermeneutic¿phenomenological method are addressed and explained providing an enriching overview of phenomenology of practice. A proposal is made for the way the suggestions made by van Manen might be organized for use with the methods involved in Phenomenology of Practice: Social sciences, philosophical and philological methods. Thereby, nurse researchers interested in conducting phenomenological research may find a global outlook and support to understand and conduct this type of inquiry which draws on the art.
Autores: Errasti Ibarrondo, María Begoña; Wilson, D. ; Jordan, J. A.; et al.
ISSN 0885-3924  Vol. 56  Nº 6  2018  págs. E137
Autores:  Comoretto , Nunziata; Larumbe Irulegui, Ana María; Arantzamendi Solabarrieta, María; et al.
ISSN 0969-9260  Vol. 25  Nº 5  2017  págs. 230 - 234
Patients with advanced cancer often continue to choose aggressive interventions and/or treatments up until the final stages of life. This clinical approach may compromise the preservation of a patient¿s quality of life, and secondarily, contributes to higher healthcare costs. Therefore, the ethics of enrolling terminal cancer patients in clinical trials which are testing new, aggressive chemotherapy agents requires careful discussion between the Oncology and the Palliative Care team. We present the case of a patient with stomach cancer admitted to a clinical trial at a very advanced stage of her disease. A number of clinical and ethical difficulties encountered by the PC team are discussed as well as possible solutions
Autores: Mujika Zabaleta, Agurtzane (Autor de correspondencia); Arantzamendi Solabarrieta, María; López de Dicastillo Sáinz de Murieta, Olga; et al.
ISSN 0309-2402  Vol. 73  Nº 11  2017  págs. 2633 - 2641
Aim: To explore the views of current and ex¿smoker nurses on their role in supporting patients to stop smoking. Background: Long-term conditions are closely linked to harmful lifestyle behaviours, including smoking and overeating. Health professionals have an important role to play in promoting healthier lifestyles. It has been described that nurses¿ health behaviours may be a barrier to their health promotion practice. There is a need to gain further understanding on why nurses¿ health promotion activity is influenced by their own health behaviour. Design: A secondary analysis of qualitative data gathered in 2010 in the context of a project that aimed to develop a smoking cessation intervention for nurses. Eleven transcripts of semi-structured interviews conducted with nurses (current and ex¿smokers) working in one university hospital in Spain. Data were analysed using framework analysis. Findings: Nurses who smoked engaged in social justification in terms of social norms and work stress. Only nurses who had quit smoking were able to identify the negative feelings it generated and the effect that it had on their past health promotion practice. This was expressed by ex-smokers as an internal conflict that prevented them from supporting patients with their own habit. Conclusion: nurses who smoke may be inhibited as health promoters without being aware of it. Interventions that focus on helping these professionals deal with the challenges associated with these encounters
Autores: Centeno Cortés, Carlos; Robinson, Carole; Noguera Tejedor, Antonio Luís (Autor de correspondencia); et al.
ISSN 1472-6920  Vol. 17  Nº 1  2017  págs. 257
Medical Schools are challenged to improve PC education and to find ways to introduce and nurture attitudes and behaviours such as empathy, patient-centred care and wholistic care. This paper describes the curriculum and evaluation results of a unique course centred on PC decision-making but aimed at introducing these other important competencies as well. Methods: The 20 hour-long optional course, presented in an art museum, combined different learning methods, including reflections on art, case studies, didactic sessions, personal experiences of faculty, reflective trigger videos and group discussions. A mixed methods approach was used to evaluate the course, including a) a post-course reflective exercise; b) a standardized evaluation form used by the University for all courses; and c) a focus group. Results: 21 students (2nd to 6th years) participated. The course was rated highly by the students. Their understanding of palliative care changed and misconceptions were dispelled. They came to appreciate the multifaceted nature of decision-making in the palliative care setting and the need to individualize care plans. Moreover, the course resulted in a re-conceptualization of relationships with patients and families, as well as their role as future physicians. Conclusions: PC decision-making therefore, augmented by the visual arts, can serve as a vehicle to address several competencies, including the introduction of competencies related to being patient-centred and empathic.
Autores: Aparicio, M.; Centeno Cortés, Carlos; Carrasco Gimeno, Jose Miguel; et al.
ISSN 1472-684X  Vol. 16  Nº 1  2017  págs. 47
Family members are involved in the care of palliative patients at home and therefore, should be viewed as important sources of information to help clinicians better understand the quality palliative care service patients receive. The objective of the study was to analyse what is valued most by family carers undergoing bereavement of a palliative care home service in order to identify factors of quality of care. Qualitative exploratory study based on documentary analysis. Content analysis of 77 gratitude documents received over 8 years by a palliative home service in Odivelas, near Lisbon (Portugal) was undertaken, through an inductive approach and using investigator triangulation. Frequency of distinct categories was quantitatively defined. Results: Three different content categories emerged from the analysis: a) Recognition of the care received and the value of particular aspects of care within recognised difficult situations included aspects such as kindness, listening, relationships established (63/77 documents)¿ b) Family recognition of the achievements of the palliative care team (29/77) indicated as relief from suffering for the patient and family, opportunity of dying at home, help in facing difficult situations, improvement in quality of life and wellbeing, and feeling of serenity during bereavement¿ c) Messages of support (45/77) related to the need of resources provided.
Autores: Arantzamendi Solabarrieta, María; Centeno Cortés, Carlos
ISSN 1352-2779  Vol. 24  Nº 2  2017  págs. 72 - 74
The term intangible describes something that has no physical presence and that cannot be touched ¿love and truth, for example, are both intangible. To a certain extent, many of the values of palliative care are also intangible. In this article, we discuss these facets of palliative care along with the nature of advanced illness and the essence of caring. We also reflect on how these intangible values are perceived, both by those who receive palliative care and those who provide it. Finally, we analyse the difficulty in conveying the message of palliative care, to society and to other professionals, precisely because of the intangible nature of what we wish to transmit.
Autores: Arantzamendi Solabarrieta, María; López de Dicastillo Sáinz de Murieta, Olga; Robinson, C.; et al.
ISSN 1134-248X  Vol. 24  Nº 4  2017  págs. 219 - 226
La utilización de la investigación cualitativa (IC) en Cuidados Paliativos (CP) está en auge, quizás porque tienen muchos aspectos en común. Ambos se centran en la persona y su entorno y están especialmente interesados en la experiencia humana. El objetivo de este artículo es presentar algunos de los enfoques más frecuentemente utilizados en las ciencias de la salud, proporcionando ejemplos de estudios de CP. Esto con el fin de ayudar a quienes se están iniciando en la IC a explorar los posibles enfoques que podrían utilizar para realizar investigación en CP. A través del ejercicio ¿armchair walkthrough¿, se concretan los aspectos clave de un proyecto de investigación, considerando los distintos enfoques: la etnografía, la fenomenología, la narrativa y la teoría fundamentada. Familiarizarse con la metodología cualitativa y algunos de los enfoques ayudará a los profesionales de CP a plantear nuevas preguntas y retos con investigación rigurosa. Palabras clave: Investigación cualitativa, etnografía, fenomenología, narrativa, teoría fundamentada.
Autores: Martínez García, Marina; Arantzamendi Solabarrieta, María; Belar, A.; et al.
ISSN 0269-2163  Vol. 31  Nº 6  2016  págs. 492 - 509
Background: Dignity therapy is psychotherapy to relieve psychological and existential distress in patients at the end of life. Little is known about its effect. Aim: To analyse the outcomes of dignity therapy in patients with advanced life-threatening diseases. Design: Systematic review was conducted. Three authors extracted data of the articles and evaluated quality using Critical Appraisal Skills Programme. Data were synthesized, considering study objectives. Data sources: PubMed, CINAHL, Cochrane Library and PsycINFO. The years searched were 2002 (year of dignity therapy development) to January 2016. `Dignity therapy¿ was used as search term. Studies with patients with advanced life-threatening diseases were included. Results: Of 121 studies, 28 were included. Quality of studies is high. Results were grouped into effectiveness, satisfaction, suitability and feasibility, and adaptability to different diseases and cultures. Two of five randomized control trials applied dignity therapy to patients with high levels of baseline psychological distress. One showed statistically significant decrease on patients¿ anxiety and depression scores over time. The other showed statistical decrease on anxiety scores pre¿post dignity therapy, not on depression. Nonrandomized studies suggested statistically significant improvements in existential and psychosocial measurements. Patients, relatives and professionals perceived it improved end-of-life experience. Conclusion: Evidence suggests that dignity therapy is beneficial. One randomized controlled trial with patients with high levels of psychological distress shows DT efficacy in anxiety and depression scores. Other design studies report beneficial outcomes in terms of end-of-life experience. Further research should understand how dignity therapy functions to establish a means for measuring its impact and assessing whether high level of distress patients can benefit most from this therapy.
Autores: García Rueda, Noelia; Carvajal Valcárcel, Ana; Saracíbar Razquin, María Isabel; et al.
ISSN 0961-5423  Vol. 25  Nº 4  2016  págs. 551 - 569
The aim of the study was to understand the experience of people living with advanced-stage cancer through literature. The search included The Cochrane Library, PubMed, PsycInfo, CINAHL and Cuiden. Thirteen studies were included. A qualitative meta-synthesis was conducted. One thread emerged from the thematic synthesis: the desire to live as normally as possible, despite being aware of the proximity of death. Three themes also emerged: "a process that is unique" with its four sub-themes; "support network" and "health context," each of them having two sub-themes. This study concludes that living with advanced-stage cancer is a unique and complex process which has both positive and negative aspects. The review provides a comprehensive view of the experience, which considers the importance of the support network and the health context in which the person lives. In this study, "normalcy" is the adjustment to the new reality and living as closely as possible to the way one lived before the disease, while developing a new relationship with being finite and death. A better understanding of the experience of living with advanced-stage cancer will help health professionals to identify the needs of the patients in order to plan individual, high-quality care.
Autores: García Rueda, Noelia; Errasti Ibarrondo, María Begoña; Arantzamendi Solabarrieta, María
ISSN 1134-248X  Vol. 23  Nº 3  2016  págs. 141 - 152
Noelia García-Rueda; Begoña Errasti-Ibarrondo; María Arantzamendi Solabarrieta. La relación enfermera-paciente con enfermedad avanzada y terminal: revisión bibliográfica y análisis conceptual. Medicina Paliativa. objetivo: Explorar y comprender el significado de la relación enfermera-paciente con enfermedad avanzada y terminal y sus beneficios a través de la literatura disponible. Método Revisión de la evidencia mediante búsquedas sistematizadas en las bases de datos Cochrane Library Plus, PubMed, UNIKA, PsycInfo y CINAHL, y mediante la técnica bola de nieve. La estrategia de búsqueda de palabras clave se dividió en 3 grandes bloques (relación enfermera-paciente, enfermería y persona cuidada con enfermedad avanzada y terminal). Tras la revisión bibliográfica se realizó un análisis conceptual de la bibliografía identificada para explorar el significado de los términos empleados, las diferencias y similitudes y las características que se le atribuyen a la relación enfermera-paciente en la literatura, así como sus beneficios y los requisitos previos para establecerla. Resultados Se incluyeron en el estudio 10 artículos y a través del análisis conceptual se exploró el significado de los términos empleados para aludir a la relación enfermera-paciente. Asimismo se identificaron las principales características que se le atribuyen a dicha relación: comunicación, confianza, comprensión y presencia, además de empatía y compasión.
Autores: Arantzamendi Solabarrieta, María; Belar, A.; Martínez García, Marina
ISSN 1751-4258  Vol. 10  Nº 4  2016  págs. 324 - 329
In recent years, there has been a growing interest in promoting dignity in care, and specific interventions have been developed to include it at the end of life. The patient dignity question (PDQ) is a recent, novel and simple intervention that healthcare professionals can implement; however, little is known about its impact. This scoping review aims to examine and map out the PDQ literature. Recent findings Studies suggest that patients, families and professionals have a positive view of the PDQ in that it helps to get to know patients and provide them with the best care possible. The PDQ seems to promote an environment of care focused on the person and the prevalence of more human aspects in clinical encounters between professionals and patients. This is especially so in situations in which human aspects of the healthcare relationship at baseline received lower marks. Healthcare professionals thought that performing the PDQ to determine what is important to the patient is a feasible and effective exercise. Summary The published literature suggests that PDQ is a beneficial intervention for approaching and getting to know a patient as a person. More studies are needed that measure pre¿post-PDQ changes and that demonstrate their impact on patient care.
Autores: Errasti Ibarrondo, María Begoña; Pérez Diez del Corral, Mercedes; Carrasco Gimeno, Jose Miguel; et al.
ISSN 0029-6554  Vol. 63  Nº 3  2015  págs. 255-268
Errasti-Ibarrondo, B; Pérez, M; Carrasco, J.M; Lama, M; Zaragoza, A; Arantzamendi, M. Essential elements of the relationship between the nurse and the person with advanced and terminal cancer: A meta-ethnography. Nursing Outlook DOI: 10.1016/j.outlook.2014.12.001 Indexada en: MEDLINE, CINAHL and the Journal Citation Reports published by Thomson Reuters. Área: Enfermería-SSCI Índice de Impacto (JCR Science 2014): 2.359 Posición de la revista en el área: 3/101 Cuartil: 1
Autores: Rullan, M; Carvajal Valcárcel, Ana; Núñez Córdoba, Jorge María; et al.
ISSN 0885-3924  Vol. 50  Nº 6  2015  págs. 874-81
The Spanish version of the PDI showed adequate psychometric properties when tested with advanced cancer patients. This research provides a three-factor alternative in Spanish to the PDI.
Autores: Martín Martín, Jesús (Autor de correspondencia); Carvajal Valcárcel, Ana; Arantzamendi Solabarrieta, María
ISSN 1137-6627  Vol. 38  Nº 3  2015  págs. 439 - 452
A quarter of the people with heart failure are at an advanced stage of the disease, during which they experience numerous common and distressing symptoms that have an impact on all spheres of their life. In this context, there is a need for frequent assessment and clinical monitoring of patients. The aim of this review is to identify the instruments used in assessing patients with advanced heart failure. For the purposes of this study, any type of questionnaire, scale or functional test used to assess some aspect of these patients was considered to be an instrument. Forty-nine tools were identified that make it possible to assess symptoms, psychological, cognitive and spiritual aspects and quality of life. The information provided on the most used instruments and their availability and applicability is a first step for their possible integration into daily clinical practice. Thus, professionals who work with these patients can improve the identification of specific needs, enabling their subsequent management and monitoring.
Autores: Carvajal Valcárcel, Ana; Teso-Vega, N.; Arantzamendi Solabarrieta, María
ISSN 1688-8375  Vol. 4  Nº 2  2015  págs. 10 - 11
Titulo completo de la Revista: Enfermería: Cuidados Humanizados. Su ISSN es: 1688-8375.
Autores: Ballesteros, M.; Centeno Cortés, Carlos; Arantzamendi Solabarrieta, María
ISSN 0260-6917  Vol. 34  Nº 6  2014  págs. e1 - 6
Objective: We explored the contribution of optional palliative care (PC) learning to the training of undergraduate nursing students. Design: This is a qualitative, exploratory study. Participants: PC students from two universities (n=236) responded to the open question: What was the contribution of the PC course to your training? Methods: A thematic analysis of the respondents' answers was performed with investigator triangulation. Findings: Four themes were identified. Firstly, the PC course provided a comprehensive view of the nursing discipline. Secondly, the course helped the students to know how to interact with, communicate with and better understand patients. Thirdly, the contribution of the course to the students' personal growth prompted them to reflect personally on death, thus promoting self-awareness. Finally, the students considered the PC course to be of great importance in the nursing curriculum. Conclusion: Nursing students believed that a PC course was an essential component in their training, which contributed favourably to their personal and professional development.
Autores: Errasti Ibarrondo, María Begoña; Martínez García, Marina; Carvajal Valcárcel, Ana; et al.
ISSN 0328-8390  Vol. 25  Nº 84  2014  págs. 243-256
Todos los modelos incluidos en esta revisión proporcionan a los profesionales de la salud un punto de partida para la reflexión e incorporación de prácticas que traten de preservar la dignidad social de los pacientes con enfermedad terminal. Uno de los modelos identificados ha sido aplicado a la práctica clínica con resultados positivos
Autores: Centeno Cortés, Carlos; Ballesteros, M.; Carrasco Gimeno, Jose Miguel; et al.
ISSN 2045-435X  Vol. 6  Nº 1  2014  págs. 128-34
The subject of PC turns out to be very important to students, who almost unanimously evaluated their experience positively and highlighted the benefits of attending a PC course. Students especially reported being surprised by the humane and holistic features of the course, and they found that what they learned in the course is applicable to all patients and prepares them to work better as doctors. Participants recommend the course for all undergraduate students as a core component of the curricula.
Autores: Errasti Ibarrondo, María Begoña (Autor de correspondencia); Arantzamendi Solabarrieta, María; Canga Armayor, Navidad
ISSN 1137-6627  Vol. 35  Nº 2  2012  págs. 269 - 283
La enfermería es una profesión que ha sufrido del estereotipo público durante mucho tiempo, estando sujeta a ser vista como una profesión predominantemente femenina, bajo el mandato médico y sin un campo competencial propio. Es innegable que en la última década se están sucediendo cambios trascendentales para la disciplina enfermera. En consecuencia, a través de esta revisión, con metodología sistemática, se pretende analizar la imagen social de la enfermería para poder vislumbrar si la población está percibiendo los cambios que se están sucediendo y si tiene una imagen cercana de lo que es o pretende ser. Tras realizar un análisis temático de las publicaciones seleccionadas han emergido ocho categorías, que pueden ayudar a explicar la visión que tiene la sociedad sobre la enfermería. Parece que predomina una ignorancia del público sobre la esencia y el foco de la disciplina, que es el cuidado de la persona, familia o comunidad. Asimismo, es una profesión poco visible ya que la sociedad todavía no la reconoce plenamente con un campo competencial propio. Con respecto a la autonomía e independencia de las enfermeras, se constata que hay una tendencia a verla como una profesión inferior a la medicina. Se percibe como una profesión estrechamente relacionada con «tareas» y se confía en ella para las actividades que le han sido asociadas tradicionalmente. No obstante, se va percibiendo como una profesión menos relacionada con la feminidad y más preparada que antaño.
Autores: Arantzamendi Solabarrieta, María; Addington-Hall, J.; Saracíbar Razquin, María Isabel; et al.
ISSN 1357-6321  Vol. 18  Nº 12  2012  págs. 597-605
ICS Objective: To describe Spanish nurses' preparedness to care for hospitalised terminally ill patients and how this translates into care delivery. Methods: An exploratory, sequential mixed methods study with two stages. Stage I used unstructured observations of 22 hospital nurses over 235 hours to understand their daily reality, followed by semi-structured interviews with 21 nurses to elicit their perspectives. Stage 2 was a regional survey (65% response rate) concerned with hospital nurses' opinions of caring for terminally ill patients and their perceived competence. Results: The nurses felt competent to provide physical but not emotional care for terminally ill patients. They reported that care could be improved, particularly through providing more emotional care. This coincided with an observed focus on physical care. The nurses reported a lack of support in caring for terminally ill patients and wanted more education on emotional issues and dealing with their own feelings. Conclusion: There is a need for an integrative approach in Spain that combines an educational programme with a supportive environment, focusing on developing nurses' competence to deliver emotional care and deal with their own feelings. Promoting a supportive environment might enable nurses to change their behaviour when caring for terminally ill patients and deal with patients' emotional as well as physical needs.
Autores: Portillo Vega, María Carmen; Senosiáin García, Juana María; Arantzamendi Solabarrieta, María; et al.
ISSN 2013-5246  Vol. 36  Nº 1  2012  págs. 31 - 38
ICS Introducción: En la bibliografía hay un vacío relacionado con la perspectiva holística del proceso de integración de la enfermedad de Parkinson en las vidas de pacientes y familiares. Objetivo: Explorar el proceso de convivencia con la enfermedad de Parkinson de pacientes y familiares, así como los factores y los mecanismos que lo favorecen o inhiben. Método: El proyecto ReNACE es un proyecto con metodología combinada, multicéntrico y multidisciplinario, de 3 años de duración, que consta de 2 fases (cualitativa y cuantitativa), realizado en la Clínica Universidad de Navarra, un centro de Salud del Servicio Navarro de Salud-Osasunbidea y la Asociación Navarra de Parkinson. Se presentan resultados preliminares de la Fase I Cualitativa. Se han recogido datos con entrevistas semiestructuradas, hojas sociodemográficas y escalas (estadio Parkinson). Se ha realizado un análisis de contenido comparativo (programa NVivo9) y un análisis estadístico (SPSS 15.0). Resultados: Participaron 15 pacientes con enfermedad de Parkinson y 16 familiares. Su mediana y rango intercuartil de edad eran de 73 (65¿76,25) y 65 (59,5¿74) años, respectivamente. En el proceso de adaptación al Parkinson, se destacan dos etapas dinámicas: 1) etapa extraordinaria, y 2) etapa de normalidad. Los principales factores y mecanismos que influían en la convivencia con el Parkinson eran: las estrategias de afrontamiento, el apoyo familiar, las redes personales y sociales, los recursos disponibles, así como la educ
Autores: Corchón Arreche, Silvia; Watson, R.; Arantzamendi Solabarrieta, María; et al.
Revista: Journal of Clinical Nursing
ISSN 0962-1067  Vol. 19  Nº 1-2  2010  págs. 217 - 226
Autores: Centeno Cortés, Carlos; Arantzamendi Solabarrieta, María; Rodríguez Martín, Belén; et al.
ISSN 0825-8597  Vol. 3  Nº 26  2010  págs. 167 - 175
Studies on the effectiveness and efficiency of palliative care (PC) services that use a methodology similar to that used by studies in other medical specialties face serious limitations, since the goals of PC are substantially different. Qualitative research methods can make an important contribution to our understanding of the features of palliative care (PC) that are most relevant to patients and their relatives. The goal of this study was to understand the reasons behind the gratitude shown in letters from bereaved relatives sent to two PC units, one in Spain and one in Portugal. A thematic analysis of the content of the letters was independently carried out by three researchers, who later collaborated to write up the results. Relatives appeared grateful primarily for the humane attitude, professional treatment, and emotional support that their loved ones received from the PC team; they thanked the team for creating a special atmosphere and offering holistic care, and they talked about the contrast between PC and other forms of care. The unsolicited gratitude expressed in their letters constitutes a valid and particularly rich source of information about the contribution that a PC team can make.
Autores: García Vivar, Cristina; Arantzamendi Solabarrieta, María; López de Dicastillo Sáinz de Murieta, Olga; et al.
Revista: Index de Enfermería
ISSN 1132-1296  Vol. 19  Nº 4  2010  págs. 283 - 288
Autores: Arantzamendi Solabarrieta, María; Belar Beitia, Alazne; Rojí Buqueras, María del Rocío
Título: End of life care
Libro:  Textbook of Palliative Care
2019  págs. 1 - 24
Textbook of Palliative Care is a comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still find ourselves having to explain its nature and practice to colleagues and to the public in general. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and their families. However, the science of palliative care is advancing and our understanding concerning many aspects of palliative care is developing rapidly. The book is divided into separate sections for ease of use. Over 100 chapters written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care.
Autores: López de Dicastillo Sáinz de Murieta, Olga; Corchón Arreche, Silvia; Arantzamendi Solabarrieta, María
Libro:  Libro de ponencias del XV Encuentro Internacional de Investigación en Enfermería
2011  págs. 183 - 184
Autores: Arantzamendi Solabarrieta, María; López-Dicastillo O; García Vivar, Cristina
Autores: Serrano Monzó, Inmaculada; Senosiáin García, Juana María; López de Dicastillo Sáinz de Murieta, Olga; et al.
Autores: García Vivar, Cristina; Portillo Vega, María Carmen; Arantzamendi Solabarrieta, María; et al.




Valoración positiva ANECA como Profesor Titular (6 diciembre 2020. Número PCD: 2020-001755) Valoración positiva ANECA como Profesor Contratado Doctor (Febrero de 2010. Número PCD: 2009-6883) Valoración positiva de la Comisión Nacional Evaluadora de la Actividad Investigadora (CNEAI): Sexenio de Investigación (2009-2015)