Revistas
Revista:
CANCER NURSING
ISSN 0162-220X
Vol. 45
N° 1
Año 2022
Págs.E134 - E145
Background Cancer survivors (CSs) have needs that can negatively impact their quality of life (QoL). Oncology nurses play a key role in providing comprehensive care in cancer survivorship, although little is known about their impact on health outcomes. Objective The aim of this study was to determine the effectiveness of nursing interventions to improve QoL and satisfaction with care of CSs. Methods A systematic review was conducted. PubMed, CINAHL, PsycINFO, and Cochrane databases were searched for experimental studies. The Joanna Briggs Institute Checklist for Randomized Controlled Trials was used to verify the quality of the studies (Prospero reference: CRD42020148294). Results Of the 8 clinical trials eligible for inclusion, 5 demonstrated that interventions conducted by nurses improved the overall QoL or some of its domains in CSs. The included studies focused on short-term survival; no studies in long-term CSs were identified. Two studies assessed satisfaction with care of survivors, obtaining positive results. Conclusions Nursing interventions seem to improve the QoL of short-term CSs. However, because of the low number of studies identified, the findings of this systematic review should be interpreted with caution. Implications for practice Further studies are necessary to strengthen the implementation of effective nursing intervention in cancer practice. Research should particularly be conducted with long-term CSs as there is lack of data on this specific stage of cancer.
Revista:
NURSE EDUCATION TODAY
ISSN 0260-6917
Vol. 97
Año 2021
Págs.104704
Objective: To explore the educational methods used in the cancer training of undergraduate students in health sciences. Design: Integrative review with a systematic methodology was performed to obtain a comprehensive picture of the variety of educational methods used in cancer training. Data sources: A search was performed in the PubMed, CINAHL, PsycINFO and Cochrane databases for the period 2008¿2020. Review methods: The Critical Appraisal Skills Program (CASP) was used to assess the quality of included studies. Three reviewers extracted data and did quality appraisal. Results: A total of 40 articles referring to cancer training in medicine and nursing were included in the review; no articles referring to other health disciplines were found. The main educational methods used were expository methods, case studies, exercises and problems, problem-based learning, learning contracts and project-oriented learning. Conclusion: This review shows the need to combine educational methods so that health sciences students acquire competency (knowledge, skill, attitude) for comprehensive cancer care. There is a gap in the training of un-dergraduate nursing students to provide person/family centered care in oncology. To improve the training and professional practice of future health professionals, interprofessional education and the involvement of people with cancer in simulation education are recommended.
Revista:
CLINICAL NURSING RESEARCH
ISSN 1054-7738
Vol. 30
N° 5
Año 2021
Págs.579 - 590
Living with chronic illness has an impact on the family's wellbeing and quality of life. An integrative review was conducted to identify and analyse the existing scales that evaluate the process of living with chronic illness or related factors of daily living from the family perspective. A search was developed in Medline, CINAHL, PsycINFO, Cochrane Library, Cuiden and Scielo databases until May 2019. From 5,344 identified articles, 13 studies were eligible for inclusion. 16 scales were identified and assessed constructs related to the concept of living with chronic illness, including quality of life; perceptions and needs; life satisfaction and well-being; impact; and psychological adjustment to the disease. However, these scales do not measure the family process of living with chronic illness from a comprehensive perspective. This review highlights the need to develop and validate a scale that evaluates the multidimensional nature of living with chronic illness from the family perspective.
Revista:
HEALTH AND SOCIAL CARE IN THE COMMUNITY
ISSN 0966-0410
Vol. 29
N° 4
Año 2021
Págs.1030 - 1040
Psychosocial adjustment to a complex and disabling long-term condition like Parkinson¿s disease is a complex, dynamic, cyclical and interactive process. Family caregivers, face multiple challenges that require a significant effort in terms of psychosocial adjustment, which must be considered by healthcare professionals in order to provide a holistic care. The patients¿ self-report version of the Psychosocial Adjustment to Illness Scale (PAIS-SR), which has been validated in Spain for use in Parkinson's disease, is designed to evaluate the psychosocial adjustment of patients. Our purpose was to validate the Spanish PAIS-SR version for caregivers of patients with Parkinson's disease. An open, national cross-sectional study with one point-in-time evaluation and retest was carried out in 450 family caregivers of patients with Parkinson's disease. Data were collected in Spain from April 2016 to September 2017. The psychometric analysis performed showed that the Spanish version of the PAIS-SR for caregivers presents adequate indicators of reliability, internal and external validity, and is structured according to the seven-domain model proposed by the author of the instrument.
Revista:
ATENCION PRIMARIA
ISSN 0212-6567
Vol. 52
N° 3
Año 2020
Págs.142 - 150
Objetivo: Presentar el estudio piloto de la Escala de Convivencia con un proceso crónico (EC-PC)en pacientes con diabetes mellitus tipo 2, insuficiencia cardiaca crónica, enfermedad pulmonarobstructiva crónica y artrosis.Dise¿no: Estudio observacional, transversal y multicéntrico.Emplazamiento: Dos hospitales de atención especializada de Navarra y Madrid.Participantes: 64 pacientes con diversos procesos crónicos, mayores de 18 a¿nos que acudana centros de atención primaria y/o consultas externas. Los pacientes con deterioro cognitivodiagnosticado y/o trastornos psiquiátricos fueron excluidos.Intervenciones: Las evaluaciones tuvieron una duración media de 15 minutos por paciente.Mediciones principales:Se evaluó la variable Convivencia con un proceso crónico, mediante laEC-PC. Se analizó la viabilidad/aceptabilidad, consistencia interna y validez de constructo.Resultados: Para la muestra total, la EC-PC mostró una buena viabilidad y aceptabilidad, sindatos faltantes. El coeficiente alfa de Cronbach alcanzó valores entre 0,64 y 0,76, y el índicede homogeneidad fue superior a 0,30 en todos los dominios de la escala. Los valores de validezinterna oscilaron entre 0,04 y 0,30. No se encontraron diferencias significativas en la puntuacióntotal de la escala en función del sexo o las diferentes patologías. Los pacientes describieron laescala como sencilla y útil.Conclusiones: El estudio piloto de la EC-PC en pacientes con diversos procesos crónicos indicaque es una medida breve y fiabl
Revista:
JOURNAL OF ADVANCED NURSING
ISSN 0309-2402
Vol. 76
N° 10
Año 2020
Págs.2719 - 2732
Aim To evaluate the effects of a psychoeducational intervention compared with an education programme to strengthen quality of life, psychosocial adjustment, and coping in people with Parkinson's disease and their informal caregivers. Design A quasi-experimental study was performed with repeated measures at baseline, after the intervention and 6 months post-intervention. Methods The study was carried out at seven primary care centres from 2015-2017. A total of 140 people with Parkinson's and 127 informal caregivers were allocated to the experimental and the control groups. The experimental group received a 9-week psychoeducational intervention, whereas the control group received a 5-week education programme. Repeated measures ANOVA were used to test differences in quality of life, psychosocial adjustment, and coping between the experimental and control groups and over time. Results Patients and informal caregivers in both the experimental and control groups showed significantly better psychosocial adjustment at the post-intervention measurement compared with baseline data. We also found significantly greater quality of life in patients and coping skills in caregivers after the end of the interventions in the experimental and control groups. Nevertheless, no significant differences were identified on the outcomes at the 6-month post-intervention measurement. Conclusion The effect of the psychoeducational intervention was not different from the effect of the education programme. The strategies applied in both interventions followed a group approach led by a multidisciplinary team covering information about PD, healthy lifestyles, and social resources. They might be easily sustained in Primary Care to improve care for people with Parkinson's and informal caregivers.
Revista:
ANALES DEL SISTEMA SANITARIO DE NAVARRA
ISSN 1137-6627
Vol. 43
N° 1
Año 2020
Págs.5 - 8
Revista:
MOVEMENT DISORDERS
ISSN 0885-3185
Vol. 35
N° S1
Año 2020
Págs.S146 - S147
Revista:
MOVEMENT DISORDERS
ISSN 0885-3185
Vol. 35
N° S1
Año 2020
Págs.S575 - S576
Revista:
BMC NEUROLOGY
ISSN 1471-2377
Vol. 20
N° 1
Año 2020
Págs.346
Background Neurologists play an essential role in facilitating the patient's process of living with Parkinson's disease (PD). The Living with Chronic Illness Scale-PD (LW-CI-PD) is a unique available clinical tool that evaluates how the patient is living with PD. The objective of the study was to analyse the LW-CI-PD properties according to the Rasch model. Methods An open, international, cross-sectional study was carried out in 324 patients with Parkinson's disease from four Latin American countries and Spain. Psychometric properties of the LW-CI-PD were tested using Rasch analysis: fit to the Rasch model, item local independency, unidimensionality, reliability, and differential item functioning by age and gender. Results Original LW-CI-PD do not fit Rasch model. Modifications emerged included simplifying the response scale and deleting misfit items, the dimensions Acceptance, Coping and Integration showed a satisfactory fit to the Rasch model, with reliability indices greater than 0.70. The dimensions Self-management and Adjustment to the disease did not reach fit to the Rasch model. Conclusion Suggestions for improving the LW-CI-PD include a multidimensional and shorter scale with 12 items grouped in three subscales with a simpler response scheme. The final LW-CI-PD Scale version is a reliable scale, with good internal construct validity, that provides Rasch transformed results on linear metric scale.
Revista:
NURSING OPEN
ISSN 2054-1058
Vol. 6
N° 3
Año 2019
Págs.1262 - 1268
Aim To report the cross-cultural adaptation and pilot study of the ongoing validation of the Spanish version of the Psychosocial Adjustment to Illness Scale with carers of people with Parkinson's disease. Design Cross-cultural adaptation and pilot study with a cross-sectional validation design of the Spanish version of the Psychosocial Adjustment to Illness Scale - Carers. Methods Twenty-one carers of people with Parkinson's disease from a Primary Care practice in Spain were recruited and completed the PAIS-Carers, the SF-36 Health Survey, the Brief COPE Inventory and an assessment form. SPSS 23.0 was used to determine viability/acceptability and preliminary aspects of internal consistency of the instrument. Results Five of the seven domains presented floor effect (71.42%), and only one presented ceiling effect (14.28%). The internal consistency of the scale and domains showed acceptable values (over 0.7). The content validity of the Spanish version seemed satisfactory with positive comments in general from participants.
Revista:
JOURNAL OF CLINICAL NURSING
ISSN 0962-1067
Vol. 28
N° 17 - 18
Año 2019
Págs.3168 - 3176
Aims and objectives To identify the personal- and disease-related factors that are associated with living with Parkinson's disease. Background Living with Parkinson's disease affects the physical, psychological, social and spiritual areas of the person. Health professionals need to know which factors influence the daily living with Parkinson's disease, in order to facilitate a positive living. Design A multicentre cross-sectional study. Methods A total of 324 patients with Parkinson's disease diagnoses were included in the study through a consecutive case sampling. Data were collected from January-June 2015, in specialised units of movement disorders of public and private and community centres, from Spain, Argentina, Mexico, Ecuador and Cuba. Nine measures were applied to evaluate personal-related factors (age, gender, psychosocial function, satisfaction with life, social support, home economical situation) and Parkinson's disease-related factors (duration of disease, motor symptoms and non-motor symptoms). The STROBE checklist was used to ensure quality reporting during the study (see File S1). Multiple linear regression analysis was carried out. Results Results indicated that social support, followed by satisfaction with life and home economical situation are the only three factors that significantly influence in living with Parkinson's disease. The rest of the factors analysed did not present significant influence in the daily living with this neurodegenerative disease. Conclusion This study highlights the necessity to put more emphasis on the person and his/her daily living with the condition and less on symptoms and treatment. Health professionals need to develop person-centred interventions that also deal with other elements of the experience of living with a long-term condition like Parkinson's disease. Relevance to clinical practice Interventions to foster positive living with Parkinson's disease in clinical practice should integrate strategies to tackle and prevent loneliness and interagency elements to increase community resources and systems of support.
Revista:
SOCIEDAD ESPAÑOLA DE ENFERMERIA NEUROLOGICA. REVISTA CIENTIFICA
ISSN 2013-5246
Vol. 49
N° January - June 2019
Año 2019
Págs.16 - 22
Introduction: Psychosocial adjustment affects the quality of life of patients with Parkinson's disease (PD) and his/her family/carers. However, this is not usually addressed in clinical practice. Objective: To evaluate coping skills, psychosocial adjustment and quality of life of patients with PD and their family/carers from a quasiexperiment at baseline time. Method: Quasi-experimental study carried out in Primary Care centres to evaluate the impact of a psychoeducational intervention in contrast with an informative intervention. The sample comprised 80 patients with PD and 80 family carers, divided into a control group and an experimental group. The psychosocial adjustment scale PAIS-SR, the coping scale Brief COPE and the quality of life scales PDQ-39 and SQLC were used in the data collection. The analysis of sociodemographic data and Student's t tests was performed using SPSS 23.0. Results: The patients and family/carers from the control group and the experimental group noticed a mild impairment in their quality of life and some difficulties in their psychosocial adjustment to illness. Both groups used coping skills with a medium-low frequency. Acceptance was the most used coping skill by patients and family/carers. No statistically significant differences were found between the control group and the experimental group. Conclusions: We observed that the quality of life and psychosocial adjustment to their illness was impacted in patients with PD and their family/carers, which could be addressed with psychoeducational interventions focused on developing their coping skills
Revista:
CANCER NURSING
ISSN 0162-220X
Vol. 42
N° 3
Año 2019
Págs.177 - 178
Revista:
ANALES DEL SISTEMA SANITARIO DE NAVARRA
ISSN 1137-6627
Vol. 42
N° 2
Año 2019
Págs.187 - 197
Para proporcionar un cuidado individualizado e
integral a los pacientes que conviven con un proceso
crónico se aboga en la actualidad por el uso de nuevas tecnologías, como la tele-enfermería. El objetivo
es identificar las principales características de la teleenfermería, así como las barreras y facilitadores para
su implantación. Revisión sistemática de las bases de
datos PubMed, Cochrane Library, Cinhal, Psycinfo, Cuiden, Dialnet y Scielo entre 2008 y 2019. Los 34 artículos
seleccionados identificaron el soporte virtual, el seguimiento telefónico y los dispositivos electrónicos como
principales características de la tele-enfermería, el perfil del paciente (no joven, con nivel socioeconómico y
educativo bajo) y la resistencia de los profesionales de
enfermería fueron las barreras identificadas, mientras
que la nueva era tecnológica se identificó como un
facilitador para su implementación. Proporcionar una
mayor formación entre los profesionales de enfermería
para dar a conocer las principales características de la
tele-enfermería es fundamental para su aceptación e integración y, consecuentemente, su implantación en la
práctica clínica diaria.
Revista:
BMC FAMILY PRACTICE
ISSN 1471-2296
Vol. 19
N° 45
Año 2018
Parkinson's disease progressively limits patients at different levels and as a result family members play a key role in their care. However, studies show lack of an integrative approach in Primary Care to respond to the difficulties and psychosocial changes experienced by them. The aim of this study is to evaluate the effects of a multidisciplinary psychoeducational intervention focusing on improving coping skills, the psychosocial adjustment to Parkinson's disease and the quality of life in patients and family carers in a Primary Care setting. Methods: This quasi-experimental study with control group and mixed methods was designed to evaluate a multidisciplinary psychoeducational intervention. Based on the study power calculations, 100 people with Parkinson's disease and 100 family carers will be recruited and assigned to two groups. The intervention group will receive the ReNACE psychoeducational intervention. The control group will be given a general educational programme. The study will be carried out in six community-based health centres. The results obtained from the two groups will be collected for evaluation at three time points: at baseline, immediately after the intervention and at 6 months post-intervention. The results will be measured with these instruments: the Quality of Life Scale PDQ-39 for patients and the Scale of Quality of Life of Care-givers SQLC for family carers, and for all participants the Psychosocial Adjustment to Illness scale and the Brief COPE Inventory. Focus groups will be organised with some patients and family carers who will have received the ReNACE psychoeducational intervention and also with the healthcare professionals involved in its development. Discussion: An important gap exists in the knowledge and application of interventions with a psychosocial approach for people with PD and family carers as a whole. This study will promote this comprehensive approach in Primary Care, which will clearly contribute in the existing knowledge and could reduce the burden of PD for patients and family carers, and also in other long-term conditions.
Revista:
ENFERMERIA CLINICA
ISSN 1130-8621
Vol. 28
N° 4
Año 2018
Págs.220 - 229
Objetivo
Analizar los instrumentos existentes en la actualidad que evalúan la convivencia del paciente con un proceso crónico o aspectos relacionados con la convivencia.
Método
Se llevó a cabo una revisión sistemática de la evidencia disponible en las bases de datos: Medline, CINHAL, PsycINFO, Cochrane Library, Embase y Cuiden. Los criterios que limitaron la búsqueda fueron: el idioma, inglés y/o español y los estudios llevados a cabo en una población adulta. No se aplicó límite de años de publicación de los artículos.
Resultados
Se identificaron y analizaron un total de 16 instrumentos que potencialmente evaluaban la convivencia con un proceso crónico y/o aspectos relacionados con el mismo. En cuanto al nombre del instrumento, 4 evaluaban el concepto convivencia con un proceso crónico, mientras que el resto de instrumentos evaluaban algún aspecto de la convivencia o el significado de convivir con un proceso crónico.
Conclusiones
Se han identificado diferentes instrumentos para evaluar el día a día del paciente con un proceso crónico, así como aspectos relacionados con el mismo. Después de esta revisión, se considera necesaria la realización de futuros estudios de validación en otras poblaciones y/o contextos para lograr instrumentos válidos y fiables que puedan ser empleados en la práctica clínica.
Revista:
REVISTA ROL DE ENFERMERIA
ISSN 0210-5020
Vol. 1
N° 40
Año 2017
Págs.16 - 24
INTRODUCCIÓN. Conocer cómo los pacientes conviven con un proceso crónico es necesario para proporcionar un cuidado individualizado e integral. En la actualidad, no existe ninguna escala validada que evalúe la convivencia con un proceso crónico, como es la enfermedad de Parkinson. OBJETIVOS. Los objetivos fueron: 1) definir el concepto Convivencia con un proceso crónico; 2) diseñar una escala de medición del grado de convivencia en pacientes con un proceso crónico, y en concreto, con la enfermedad de Parkinson. METODOLOGÍA. Se llevaron a cabo dos pasos metodológicos. Respecto al primero, se realizó un análisis del concepto Convivencia con un proceso crónico, a través del método evolutivo de Rodgers. El segundo paso metodológico fue el diseño de la escala, a través de la guía propuesta por DeVellis. RESULTADOS. A través del análisis de concepto se identificó que la Convivencia con un proceso crónico es un proceso complejo, dinámico, cíclico y multidimensional compuesto por los atributos de Aceptación, Afrontamiento, Automanejo, Integración y Adaptación. En cuanto a los resultados del diseño de la escala, se desarrolló una medida autocumplimentada, con cinco opciones de respuesta, tipo Likert y 27 ítems. CONCLUSIONES. La escala diseñada, es una medida innovadora y de interés potencial clínico que permite identificar qué factor o factores hacen que la persona conviva mejor o peor con la enfermedad y, consecuentemente, intervenir de manera integral, acorde con las necesidades indi
Revista:
NPJ PARKINSON'S DISEASE
ISSN 2373-8057
Vol. 2
N° UNSP 16022
Año 2016
Understanding how a person lives with a chronic illness, such as Parkinson's disease (PD), is necessary to provide individualized care and professionals role in person-centered care at clinical and community levels is paramount. The present study was aimed to analyze the psychometric properties of the Living with Chronic Illness-PD Scale (EC-PC) in a wide Spanish-speaking population with PD. International cross-sectional study with retest was carried out with 324 patients from four Latin American countries and Spain. Feasibility, acceptability, scaling assumptions, reliability, precision, and construct validity were tested. The study included 324 patients, with age (mean +/- s.d.) 66.67 +/- 10.68 years. None of the EC-PC items had missing values and all acceptability parameters fulfilled the standard criteria. Around two-third of the items (61.54%) met scaling assumptions standards. Concerning internal consistency, Cronbach's alpha values were 0.68-0.88; item-total correlation was 40.30, except for two items; item homogeneity index was 40.30, and inter-item correlation values 0.14-0.76. Intraclass correlation coefficient for EC-PC stability was 0.76 and standard error of measurement (s.e.m.) for precision was 8.60 (for a EC-PC s.d. = 18.57). EC-PC presented strong correlation with social support (r(S) = 0.61) and moderate correlation with life satisfaction (r(S) = 0.46). Weak and negligible correlations were found with the other scales.
Revista:
PARKINSONISM AND RELATED DISORDERS
ISSN 1353-8020
Vol. 25
Año 2016
Págs.52 - 57
Introduction: To explore the psychometric attributes of a new Satisfaction with Life Scale (SLS-6) in a wide Spanish-speaking population with Parkinson's disease (PD).
Methods: This was an international, cross-sectional study. Several rater-based and patient-reported outcomes measures for evaluation of PD (e.g., Scales for Outcomes in Parkinson's Disease-Motor) and other constructs (e.g., Duke-UNC Functional Social Support Questionnaire, Scale for Living with Chronic Illness) were applied together with the SLS-6. Acceptability, scaling assumptions, reliability, precision, and construct validity were tested.
Results: The study included 324 patients from five countries, with age (mean ± standard deviation) 66.67 ± 10.68 years. None of the SLS-6 items had missing values and all acceptability parameters fulfilled the standard criteria. Scaling assumptions allowed the calculation of a summary index from items 2 to 6, complementary to the global evaluation (item 1). For these five items, Cronbach's alpha was 0.85; the corrected item¿total correlation 0.53¿0.73; inter-item correlation, 0.45¿0.70, with an item homogeneity index of 0.55. The standard error of measurement, based on Cronbach's alpha for a single observation, was 3.48. SLS-6 correlations were moderate to strong (rs ¿ 0.35) with the patient-reported outcomes and weak to moderate with the rater-based assessments used in the study. The SLS-6 total score was significantly different according to PD severity levels establised
Revista:
REVISTA DE NEUROLOGIA
ISSN 0210-0010
Vol. 61
N° 10
Año 2015
Págs.447 - 453
Revista:
JOURNAL OF CLINICAL NURSING
ISSN 0962-1067
Vol. 24
N° 17 - 18
Año 2015
Págs.2357 - 2367
Findings generated from this concept analysis can raise awareness of Living with chronic illness so that this process could be assessed in a correct and uniform way in the clinical community and improved when needed.
Revista:
PRIMARY HEALTH CARE
ISSN 0264-5033
Vol. 24
N° 10
Año 2014
Págs.26 - 29
Parkinson¿s disease (PD) is a long-term condition that affects patients¿ and carers¿ quality of life. It is important to develop and implement new approaches that bring together health and psychosocial care for people living with chronic illnesses such as PD. The authors emphasise the role of primary care nurses in supporting patients and their informal carers, and outline how practitioners can focus care on patients¿ psychosocial as well as physical needs. The article includes a literature review of the process of living with PD and discusses the development and implementation of interventions based on assessments tailored to the individual needs of patients and their carers.
Revista:
ANALES DEL SISTEMA SANITARIO DE NAVARRA
ISSN 1137-6627
Vol. 36
N° 1
Año 2013
Págs.77 - 85
Fundamento. La incidencia de errores de administración de medicación (EAM) es alta y costosa para pacientes e instituciones sanitarias. En su ocurrencia intervienen factores humanos y del entorno de trabajo. El objetivo de este trabajo es identificar los factores del entorno de trabajo que se relacionan con la ocurrencia de EAMs en el ámbito hospitalario.
Metodología. Se llevó a cabo una revisión narrativa de la literatura. Se incluyeron 8 artículos tras revisar las bases de datos MEDLINE, CINAHL y COCHRANE LIBRARY, durante el periodo 2002-2012.
Resultados. Las distracciones e interrupciones, la sobrecarga de trabajo, el diseño de las unidades y las características del material han sido destacados entre los factores del entorno de trabajo que intervienen en la ocurrencia de errores de administración de medicación.
Conclusiones. La creación de artefactos organizacionales para reducir las interrupciones; la implicación del paciente en la administración de medicación; la introducción de nuevas tecnologías y la mejora del etiquetado de los medicamentos puede ayudar a reducir la incidencia de errores de administración de medicación. Para avanzar en la identificación y gestión de factores precursores de errores de administración de medicación se recomienda la realización de estudios de cohortes prospectivas o revisiones.
Revista:
ANALES DEL SISTEMA SANITARIO DE NAVARRA
ISSN 1137-6627
Vol. 36
N° 3
Año 2013
Págs.541
