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Living with chronic illness has an impact on the family's wellbeing and quality of life. An integrative review was conducted to identify and analyse the existing scales that evaluate the process of living with chronic illness or related factors of daily living from the family perspective. A search was developed in Medline, CINAHL, PsycINFO, Cochrane Library, Cuiden and Scielo databases until May 2019. From 5,344 identified articles, 13 studies were eligible for inclusion. 16 scales were identified and assessed constructs related to the concept of living with chronic illness, including quality of life; perceptions and needs; life satisfaction and well-being; impact; and psychological adjustment to the disease. However, these scales do not measure the family process of living with chronic illness from a comprehensive perspective. This review highlights the need to develop and validate a scale that evaluates the multidimensional nature of living with chronic illness from the family perspective.

Objetivo: Presentar el estudio piloto de la Escala de Convivencia con un proceso crónico (EC-PC)en pacientes con diabetes mellitus tipo 2, insuficiencia cardiaca crónica, enfermedad pulmonarobstructiva crónica y artrosis.Dise¿no: Estudio observacional, transversal y multicéntrico.Emplazamiento: Dos hospitales de atención especializada de Navarra y Madrid.Participantes: 64 pacientes con diversos procesos crónicos, mayores de 18 a¿nos que acudana centros de atención primaria y/o consultas externas. Los pacientes con deterioro cognitivodiagnosticado y/o trastornos psiquiátricos fueron excluidos.Intervenciones: Las evaluaciones tuvieron una duración media de 15 minutos por paciente.Mediciones principales:Se evaluó la variable Convivencia con un proceso crónico, mediante laEC-PC. Se analizó la viabilidad/aceptabilidad, consistencia interna y validez de constructo.Resultados: Para la muestra total, la EC-PC mostró una buena viabilidad y aceptabilidad, sindatos faltantes. El coeficiente alfa de Cronbach alcanzó valores entre 0,64 y 0,76, y el índicede homogeneidad fue superior a 0,30 en todos los dominios de la escala. Los valores de validezinterna oscilaron entre 0,04 y 0,30. No se encontraron diferencias significativas en la puntuacióntotal de la escala en función del sexo o las diferentes patologías. Los pacientes describieron laescala como sencilla y útil.Conclusiones: El estudio piloto de la EC-PC en pacientes con diversos procesos crónicos indicaque es una medida breve y fiabl

Aim To report the cross-cultural adaptation and pilot study of the ongoing validation of the Spanish version of the Psychosocial Adjustment to Illness Scale with carers of people with Parkinson's disease. Design Cross-cultural adaptation and pilot study with a cross-sectional validation design of the Spanish version of the Psychosocial Adjustment to Illness Scale - Carers. Methods Twenty-one carers of people with Parkinson's disease from a Primary Care practice in Spain were recruited and completed the PAIS-Carers, the SF-36 Health Survey, the Brief COPE Inventory and an assessment form. SPSS 23.0 was used to determine viability/acceptability and preliminary aspects of internal consistency of the instrument. Results Five of the seven domains presented floor effect (71.42%), and only one presented ceiling effect (14.28%). The internal consistency of the scale and domains showed acceptable values (over 0.7). The content validity of the Spanish version seemed satisfactory with positive comments in general from participants.

Para proporcionar un cuidado individualizado e integral a los pacientes que conviven con un proceso crónico se aboga en la actualidad por el uso de nuevas tecnologías, como la tele-enfermería. El objetivo es identificar las principales características de la teleenfermería, así como las barreras y facilitadores para su implantación. Revisión sistemática de las bases de datos PubMed, Cochrane Library, Cinhal, Psycinfo, Cuiden, Dialnet y Scielo entre 2008 y 2019. Los 34 artículos seleccionados identificaron el soporte virtual, el seguimiento telefónico y los dispositivos electrónicos como principales características de la tele-enfermería, el perfil del paciente (no joven, con nivel socioeconómico y educativo bajo) y la resistencia de los profesionales de enfermería fueron las barreras identificadas, mientras que la nueva era tecnológica se identificó como un facilitador para su implementación. Proporcionar una mayor formación entre los profesionales de enfermería para dar a conocer las principales características de la tele-enfermería es fundamental para su aceptación e integración y, consecuentemente, su implantación en la práctica clínica diaria.

Parkinson's disease progressively limits patients at different levels and as a result family members play a key role in their care. However, studies show lack of an integrative approach in Primary Care to respond to the difficulties and psychosocial changes experienced by them. The aim of this study is to evaluate the effects of a multidisciplinary psychoeducational intervention focusing on improving coping skills, the psychosocial adjustment to Parkinson's disease and the quality of life in patients and family carers in a Primary Care setting. Methods: This quasi-experimental study with control group and mixed methods was designed to evaluate a multidisciplinary psychoeducational intervention. Based on the study power calculations, 100 people with Parkinson's disease and 100 family carers will be recruited and assigned to two groups. The intervention group will receive the ReNACE psychoeducational intervention. The control group will be given a general educational programme. The study will be carried out in six community-based health centres. The results obtained from the two groups will be collected for evaluation at three time points: at baseline, immediately after the intervention and at 6 months post-intervention. The results will be measured with these instruments: the Quality of Life Scale PDQ-39 for patients and the Scale of Quality of Life of Care-givers SQLC for family carers, and for all participants the Psychosocial Adjustment to Illness scale and the Brief COPE Inventory. Focus groups will be organised with some patients and family carers who will have received the ReNACE psychoeducational intervention and also with the healthcare professionals involved in its development. Discussion: An important gap exists in the knowledge and application of interventions with a psychosocial approach for people with PD and family carers as a whole. This study will promote this comprehensive approach in Primary Care, which will clearly contribute in the existing knowledge and could reduce the burden of PD for patients and family carers, and also in other long-term conditions.

Introduction: To explore the psychometric attributes of a new Satisfaction with Life Scale (SLS-6) in a wide Spanish-speaking population with Parkinson's disease (PD). Methods: This was an international, cross-sectional study. Several rater-based and patient-reported outcomes measures for evaluation of PD (e.g., Scales for Outcomes in Parkinson's Disease-Motor) and other constructs (e.g., Duke-UNC Functional Social Support Questionnaire, Scale for Living with Chronic Illness) were applied together with the SLS-6. Acceptability, scaling assumptions, reliability, precision, and construct validity were tested. Results: The study included 324 patients from five countries, with age (mean ± standard deviation) 66.67 ± 10.68 years. None of the SLS-6 items had missing values and all acceptability parameters fulfilled the standard criteria. Scaling assumptions allowed the calculation of a summary index from items 2 to 6, complementary to the global evaluation (item 1). For these five items, Cronbach's alpha was 0.85; the corrected item¿total correlation 0.53¿0.73; inter-item correlation, 0.45¿0.70, with an item homogeneity index of 0.55. The standard error of measurement, based on Cronbach's alpha for a single observation, was 3.48. SLS-6 correlations were moderate to strong (rs ¿ 0.35) with the patient-reported outcomes and weak to moderate with the rater-based assessments used in the study. The SLS-6 total score was significantly different according to PD severity levels establised

Findings generated from this concept analysis can raise awareness of Living with chronic illness so that this process could be assessed in a correct and uniform way in the clinical community and improved when needed.

Parkinson¿s disease (PD) is a long-term condition that affects patients¿ and carers¿ quality of life. It is important to develop and implement new approaches that bring together health and psychosocial care for people living with chronic illnesses such as PD. The authors emphasise the role of primary care nurses in supporting patients and their informal carers, and outline how practitioners can focus care on patients¿ psychosocial as well as physical needs. The article includes a literature review of the process of living with PD and discusses the development and implementation of interventions based on assessments tailored to the individual needs of patients and their carers.