Revistas
Revista:
HEART AND LUNG
ISSN:
0147-9563
Año:
2022
Vol.:
51
N°:
2022
Págs.:
32 - 39
Background: Chronic heart failure (CHF) is a syndrome that greatly impacts people's lives. Due to the poor prognosis of CHF, together with the frequent exacerbations of symptoms, death is a topic that is very present in the lives of patients with CHF. Objective: To explore thoughts about death experienced by patients with chronic heart failure in their daily lives. Methods: A hermeneutic phenomenological study was carried out. Conversational interviews were conducted with 20 outpatients with chronic heart failure. Analysis of the responses was based on the method proposed by van Manen. Results: From the analysis, four main themes emerged: (1) Feeling afraid of the possibility of dying; (2) Acceptance of the possibility of death; (3) Desiring death for relief from suffering; and (4) Striving to continue living to enjoy family. Conclusions: This study presents, as a novel finding, that people with CHF experience the possibility of near death on a daily basis. This experience, which they must encounter on their own, makes them afraid. In addition, some of them, in view of the discomfort they are living, wish to die, with some even considering committing suicide. (C) 2021 The Authors. Published by Elsevier Inc.
Revista:
JOURNAL OF FAMILY NURSING
ISSN:
1074-8407
Año:
2022
Vol.:
28
N°:
1
Págs.:
17 - 30
Currently, the dying process in Spain is moving to the home environment where responsibility for care falls largely on the family, thereby challenging and testing the stability of the family. Previous research has focused on the impact of illness on the primary caregiver; therefore, a knowledge gap exists. This study aimed to understand families' unitary experiences of providing home care to terminally ill family member. Using the "Model of Interpersonal Relationship Between the Nurse and the Person/Family Cared For," narrative research included family and individual interviews with nine families (9 groups/23 individuals). Thematic narrative analysis was used to interpret the interviews. The results highlight the impact of illness on family well-being as a whole. Family members often felt abandoned while caring for an ill family member and wished to be cared for themselves. However, their immediate community and the nurses caring for their ill family member neglected them. A paradigm shift is required by society and in home care at the end of life to better support the family.
Revista:
NURSING AND HEALTH SCIENCES
ISSN:
1441-0745
Año:
2022
Vol.:
24
N°:
1
Págs.:
123 - 131
Understanding the unique experience of nursing students providing frontline support in COVID-19 hospital wards is crucial for the design of strategies to improve crisis management and mitigate future pandemic outbreaks. Limited research concerning this phenomenon has been published. This qualitative study aimed to understand the experience of providing support from COVID-19 frontline nursing students' perspective. Online interviews were conducted with nine nursing students from April to May 2020; interview data were analyzed by content analysis using Burnard's method. Six main categories emerged from the data analysis: "experiencing a rapid transition from student to professional," "fear and uncertainty of the unknown," "resilience throughout the crisis," "sense of belonging to a team," "shared responsibility," and "importance of the profession." Based on these findings, multicomponent strategies that function in parallel with practical contexts should be developed to enable students to diligently adapt their abilities to their new role and cope with health crises.
Revista:
ANALES DEL SISTEMA SANITARIO DE NAVARRA
ISSN:
1137-6627
Año:
2021
Vol.:
44
N°:
3
Págs.:
351 - 360
Background. Establishing the level of chronic cardiac inpatient empowerment is essential. By doing so, it is possible to identify groups with a lower level. It also provides a basis for designing effective strategies to improve their control over decision making and the actions that affect their health and wellness. The shortage of studies of this phenomenon for this particular population and context suggests that such patients are not receiving proper care. Methods. A prospective and descriptive study was carried out. A validated Spanish version of the Patient empowerment in long-term conditions scale was used. The survey has 47 items, grouped into three dimensions: Positive attitude and feeling of control, Knowledge in shared decision making, and Seeking information and sharing with other patients. It was distributed 24 hours before hospital discharge. Results. Twenty five questionnaires were collected (81%). The mean global empowerment score of the patients was 165.92 +/- 20.9. The dimension Positive attitude and sense of control showed the lowest score, with a mean of 3.4 +/- 0.5. An inverse weak relationship was found between the level of empowerment and age (rho =-0.240; p = 0.000) while a positive one was found with 10-year survival (rho = 0,316; p= 0.01). Conclusion. The level of empowerment of the patients in this study was medium-high. The strategies used to address the care of this population should focus on working on their attitude towards the disease and perceived control of the situation, and should be individualized according to age.
Revista:
ANALES DEL SISTEMA SANITARIO DE NAVARRA
ISSN:
1137-6627
Año:
2021
Vol.:
44
N°:
3
Págs.:
351 - 360
Fundamento. Conocer el nivel de empoderamiento de las personas con insuficiencia cardiaca crónica hospitalizadas es crucial para identificar a las personas con un nivel de empoderamiento más bajo y fundamentar el diseño de estrategias efectivas para mejorar su control sobre las decisiones y acciones que afectan a su salud y bienestar. La falta de estudio de este fenómeno en esta población y contexto, sugiere que estos pacientes no están siendo atendidos adecuadamente.
Material y métodos. Estudio descriptivo, prospectivo. Se utilizó el Cuestionario de empoderamiento del paciente con enfermedad crónica, traducido y validado al español, que consta de 47 ítems, agrupados en tres dimensiones: Actitud positiva y sentido del control, Toma de decisiones compartida e informada, y Búsqueda de información y compartir entre iguales. Fue distribuido para su cumplimentación en las 24 horas previas al alta hospitalaria.
Resultados. Se recogieron 25 cuestionarios (81%). La puntuación global media de empoderamiento fue de 165,92 ± 20,9. La dimensión Actitud positiva y sentido de control fue la peor puntuada, con una media de 3,4 ± 0,5. Se encontró una relación inversa y débil entre el nivel de empoderamiento y la edad (rho¿=¿-0,240; p¿=¿0,000) y una relación débil y positiva con la supervivencia a los 10 años (rho¿=¿0,316; p¿=¿0,01).
Conclusión. El nivel de empoderamiento de los pacientes de este estudio fue medio-alto. Las estrategias para abordar la atención de esta población deberían centrarse en trabajar su actitud respecto a la enfermedad y percepción de control de la situación e individualizarse conforme a la edad.
Revista:
CLINICAL NURSING RESEARCH
ISSN:
1054-7738
Año:
2021
Vol.:
30
N°:
2
Págs.:
171 - 182
The complicated situation experienced by chronic heart failure (CHF) patients affects their entire well-being but clinical
practice continues to fail to adequately respond to their demands. The aim of this study was to understand the meaning of
living with CHF from the patient¿s perspective. A hermeneutic phenomenological study was conducted according to Van
Manen's phenomenology of practice method. Individual conversational interviews were held with 20 outpatients with CHF.
Six main themes emerged from the analysis: (1) Living with CHF involves a profound change in the person; (2) The person
living with CHF has to accept their situation; (3) The person with CHF needs to feel that their life is normal and demonstrate
it to others; (4) The person with CHF needs to have hope; (5) Having CHF makes the person continuously aware of the
possibility of dying; (6) The person with CHF feels that it negatively influences their close environment.
Revista:
JOURNAL OF ADVANCED NURSING
ISSN:
0309-2402
Año:
2020
Vol.:
76
N°:
1
Págs.:
275 - 286
Aim To explore the perception of normality in life experienced by patients with chronic heart failure. Design A hermeneutic phenomenological study was conducted. Methods Individual conversational interviews were held with 20 outpatients with chronic heart failure between March 2014-July 2015. Van Manen's phenomenology of practice method was used for data analysis. Results From the analysis, four main themes emerged: (a) Accepting my new situation; (b) Experiencing satisfaction with life; (c) Continuing with my family, social and work roles; and (d) Hiding my illness from others. Conclusions The present study makes a novel contribution to understanding the importance of the perception of normality in the lives of patients with chronic heart failure. It was found that patients need to incorporate this health experience into their lives and reach a 'new normal', thus achieving well-being. Several factors were identified that can help promote this perception in their lives; therefore, nursing interventions should be designed to help develop scenarios encouraging this normalization process. Impact Although the implications of having a sense of normality or experiencing 'normalization' of the illness process in life have been studied in other chronic patient populations, no studies to date have examined how patients with chronic heart failure experience this phenomenon in their lives. For the first time, the results of this research prove that the perception of normality is a key aspect in the experience of living with chronic heart failure.
Revista:
EVIDENTIA
ISSN:
1697-638X
Año:
2019
Vol.:
16
N°:
e11351
Págs.:
1 - 5
Objetivo principal: Identificar las necesidades que presentan los pacientes con dolor crónico, cómo repercute en su vida y determinar terapias que contribuyen a mejorar el control del dolor. Metodología: Presentación de un caso, mujer de 81 años con úlcera venosa asociada a dolor crónico que afecta a su bienestar. Se realizó una revisión bibliográfica en las bases de datos Pubmed, Cinhal, Cuiden y Dialnet llegando a la inclusión de 11 artículos para su análisis. Resultados principales: Los pacientes con dolor crónico ven alteradas sus necesidades físicas, psicológicas y sociales. Se identifican factores que influyen positiva y negativamente en la experiencia con la enfermedad. Se comprueba la existencia de diversas terapias no farmacológicas eficaces en el control de los síntomas. Conclusión principal: El dolor crónico es una enfermedad que afecta de forma holística a la persona y que podría ser abordado con terapias complementarias a la farmacológica.
Revista:
JOURNAL OF CLINICAL NURSING
ISSN:
0962-1067
Año:
2016
Vol.:
25
N°:
17-18
Págs.:
2413 - 2429
AIMS AND OBJECTIVES:
To determine, from a systematic literature review, the experience of living with heart failure and to propose some practice guidelines and research questions.
BACKGROUND:
Chronic heart failure has been one of the fastest growing illnesses in recent decades, with almost 23 million people affected worldwide. This complex syndrome has multiple causes and appears when underlying heart disease is advanced. Currently, heart failure has no cure and leads to a significant deterioration in patients' quality of life.
DESIGN:
Qualitative meta-synthesis.
METHODS:
A qualitative meta-synthesis was conducted to extract and analyse qualitative research from the Cochrane, PubMed, CINAHL, PsycINFO, Web of Science and Cuiden databases. Snowball sampling and a manual search were performed to identify other relevant studies.
RESULTS:
Twenty-five qualitative studies were selected. The findings indicate that there are three main themes that describe the phenomenon. The first theme refers to the experiences related to the beginning of the process. The second theme is connected with the effects on the person: physical, emotional, social and spiritual changes. The third theme is linked with how to live with heart failure despite the illness, including the adjustment and coping process and how external resources can help them to manage.
CONCLUSIONS:
Heart failure has a major impact on the entire person, but some areas have not been addressed. By creating new tools to underst [...]
Revista:
REVISTA ROL DE ENFERMERIA
ISSN:
0210-5020
Año:
2012
Vol.:
35
N°:
4
Págs.:
292 - 299
Dentro del cuidado integral al paciente, la familia debe ocupar una parte indispensable puesto que también se ve afectada por la situación. Por ello, la labor de enfermería debe ir dirigida tanto al individuo como a su entorno, siendo de gran ayuda identificar sus necesidades para cubrirlas adecuadamente. Además, dentro del proceso de convalecencia, la familia atraviesa varias fases de afrontamiento y cada una de ellas tiene unas características propias que hacen que las intervenciones de enfermería deban adecuarse. El objetivo de este artículo es evidenciar la importancia de la atención a la familia, identificando las fases de afrontamiento, reconociendo sus necesidades y detectando los cuidados pertinentes. Para ello, se desarrolla un caso clínico que aborda la situación de una familia con un miembro ingresado en una unidad de cuidados intensivos por una hepatitis aguda fulminante. Los instrumentos utilizados para llevar a cabo el análisis del caso son: las necesidades de la familia descritas por Leske y otros autores, las fases de afrontamiento identificadas por Kubler-Ross y la escala de modos de afrontamiento desarrollada por Lazarus y Folkman. Las enfermeras tienen un rol privilegiado por su contacto cercano con las personas; esto contribuye a ser un agente facilitador en la interacción del paciente y su familia con el ambiente hospitalario.
Otros (PIUNA, fundaciones, contratos…)
Título:
El significado del entorno en el Modelo de relación interpersonal entre la enfermera y la persona/familia cuidada: conociendo la experiencia de las enfermeras
Código de expediente:
2018-25
Investigador principal:
Mónica Vázquez Calatayud
Financiador:
UNIVERSIDAD DE NAVARRA
Convocatoria:
2019 Convocatoria PIUNA
Fecha de inicio:
01/09/2018
Fecha fin:
31/08/2019
Importe concedido:
4.110,00€
