Journals
Authors:
Reigada, C.; Sandgren, A.; Rivas, S.; et al.
Journal:
BMC PALLIATIVE CARE
ISSN:
1472-684X
Year:
2023
Vol.:
22
N°:
1
pp.
46
IntroductionThe message of palliative care can be promoted using creative thinking and gamification. It can be an innovative strategy to promote changes in behaviour, promote thinking, and work on skills such as empathy.AimDesign, test and evaluate a gamified social intervention to enhance palliative care awareness among young university students from non-health background.MethodsParticipatory action research study with mixed methods, Design Thinking and using the Public Engagement strategy. Forty-three undergraduate students participated in a Palliative Care Stay Room and completed the Test of Cognitive and Affective Empathy (TECA) before and after the game. At the end of the game, a ten-minute debriefing was held with the participants, which was concluded with an open conversation. The content analysis was done independently and the sum of the scores of each dimension was compared before and after the activity.FindingsThe Stay Room improved the participants' knowledge and new perspectives about palliative care. Before the game, their views focused on the end of life and after the game on their values, highlighting the dedication of the healthcare professionals who do not treat death but the life until death. After de game, participants (N = 43: female = 23; male = 20; x 19.6 years old) presented higher values in perspective adoption (intellectual ability to put oneself in the other's place) p = 0.046 and in emotional understanding (ability to recognize emotional states) p = 0.018, and had high scores on empathic joy (p = 0.08).ConclusionGamification can be used in teaching and transmitting positive attitudes. Palliative Care and can help young university students to think positively about care issues.
Journal:
ANALES DEL SISTEMA SANITARIO DE NAVARRA
ISSN:
1137-6627
Year:
2023
Vol.:
46
N°:
2
pp.
e1039
Background. Person-centred practices - following national and international developments in health-care policies - have become a key approach in healthcare. The Person-Centred Practice Inventory - Staff is an instrument based on the theo-retical framework Person-Centred Practice that focuses on the staff's perspective and how they experience person -cen-tred practices. Here, the aim of this study is to obtain the first Spanish version of the PCPI-S translated and adapted into the Spanish context. Methods. The translation and adaptation of the instrument followed the Translation and Cultural Adaptation of Patient Reported Outcomes Measures - Principles of Good Practice, which included a consulting session with experts. Content va-lidation measures on clarity and relevance were assessed for every item (I-CVI) and the survey as a whole (S-CVI/Ave). Results. No major difficulties were registered to reach an agree-ment on the 12 items that needed to be clarified. Regarding cla-rity and relevance. The validity index per item (I-CVI) obtained excellent scores for clarity in 53 items and for relevance in 59; the S-CVI/Ave showed excellent results (>= 90). Conclusions. This first version of the Person-Centred Practice Inventory - Staff instrument adapted to the Spanish context is conceptually and semantically equivalent to the original one. This valuable tool will be of great help to identify the perception of healthcare professionals on person-centred practices.
Journal:
THINKING SKILLS AND CREATIVITY
ISSN:
1871-1871
Year:
2022
Vol.:
46
pp.
101179
Society's understanding of palliative care has room for improvement. Although the World Health Organisation highlighted palliative care as a human right, many people still lack access to this crucial form of treatment. The paucity of understanding and social discussion surrounding palliative care has, moreover, negatively impacted its development and implementation. This study therefore aims to construct a strategy that will empower a specific community to solve their own palliative care-related misunderstandings. Using Participatory Action Research and Design Thinking methodologies and adopting the strategy of Public Engagement in Responsible Research and Innovation, a design group worked for three months through five virtual focus groups. Moving through the phases of empathizing, defining, ideation, prototyping, and testing, the design group generated 33 ideas to address palliative care-related problems. Ideas related to self-learning, the use of technology, and the exchange of personal experiences are highlighted as innovative ways to promote palliative care. The design group adopted a variety of strategies, used disruptive tools, and created and tested rapid prototypes to discover novel solutions. This method of working, centred on interdisciplinarity and creativity, presents an efficient way to involve the members of a community in solving their own problems.
Journal:
ANALES DEL SISTEMA SANITARIO DE NAVARRA
ISSN:
1137-6627
Year:
2022
Vol.:
45
N°:
3
pp.
e1016
Background. Person-centered care has become a key global approach that seeks to provide answers to all factors of the complex health care-related processes. This has led to the development of theoreti-cal frameworks that represent the components of person-centered care. The internationally recognized Person-Centred Practice Framework (PCPF) (McCormack and McCance) allows multidisciplinary teams to understand and operationalize the dimensions for the development of person-centered care. The aim of this study was to obtain the first Spanish version of the PCPF translated and adapted to the Spanish con-text. Methods. We translated the PCPF following the Translation and cul-tural adaptation process for Patient-Reported Outcomes (PRO) Measures guidelines. A consulting session with experts was part of the process and content validation on clarity and relevance for each domain was performed. Results. We encountered no significant difficulties to reach agree-ments on most of the terms except for Having a sympathetic presence. Not only was a complex term to translate but also to trans-culturally adapt. Regarding relevance and clarity, the content index by construct (I-CVI) and the global framework (S-CVI/Ave) were consistent with their original counterparts (>= 0.90). Conclusions. The adapted Spanish version is clear, significant, and conceptually equivalent to the original PCPF. It will allow a better com-prehension of the person-centered practice framework in the Spanish context and facilitate the implementation of this approach in clinical practices.
Journal:
NURSE EDUCATION TODAY
ISSN:
0260-6917
Year:
2021
Vol.:
106
pp.
105001
BACKGROUND: Cultural sensibility is an important concept linked to the achievement of cultural competence. Health professionals must first improve their cultural sensibility to become culturally competent and to be able to offer competent care to culturally diverse populations. Aim To develop and psychometrically test the Cultural Sensibility Scale for Nursing (CUSNUR), a cultural sensibility scale that can be used in nursing for the achievement of competencies needed to care for culturally diverse populations.
DESIGN AND METHODS: The cross-sectional survey was conducted over two stages. The first stage involved the cross-cultural and discipline-specific adaptation of an existing scale addressing this concept in the field of law using the reverse translation method. Second, validation of the scale was carried out from October 2016-June 2017 by studying the psychometric properties of the questionnaire through an analysis of content acceptability and reliability and through exploratory factor analysis (EFA).
RESULTS: The questionnaire was designed to be clear, easy to understand, and of adequate length, and experts involved in content validation agreed that the scale meets these criteria. A total of 253 nursing students participated in the validation stage. Four factors were identified from the EFA: (1) patient and health professional behaviours, (2) self-assessments, (3) self-awareness, and (4) cultural influence. Two items were excluded. Factorial saturation is adequate for all factors (>0.30). The Cronbach alpha was measured as 0.75.
CONCLUSIONS: This study presents the first version of the CUSNUR and demonstrates that the scale is valid and reliable.
Journal:
NURSE EDUCATION TODAY
ISSN:
0260-6917
Year:
2021
Vol.:
101
pp.
104879
Education in palliative care is a required competence for the nursing degree.Pedagogical strategies in palliative care are mainly aimed at promoting an understanding of patients with advanced disease. Phenomenological texts are stories intended to evoke lived experiences and help understand these complex situations. However, there is no evidence regarding the experience of reading phenomenological texts in nursing. The aim of this study is to determine what impact nursing students have when reading a phenomenological text about the experience of people living with advanced cancer. The students¿ writings showed that reading the phenomenological text caused them to reflect and feel moved and challenged. The impact on the students is grouped into three categories: the experience of the corporeality of patients makes students aware of the importance of the body; the disease as an individual transformative process challenges students; and the experiences of advanced cancer
patients make students aware of the importance of how they care for patients and their families. The reading of a phenomenological text on the experience of living with advanced cancer is innovative and may be a teaching method that promotes care focused on the person with advanced illness, key aspect for student¿s competency in clinical practice.
Journal:
QUALITATIVE HEALTH RESEARCH
ISSN:
1049-7323
Year:
2020
Vol.:
30
N°:
8
pp.
1143 - 1155
Abstract
Literature suggests that it is possible to live well with advanced cancer but little is known about the process. In this article, we present a secondary analysis of experiences of living with advanced cancer (n=22) that refines the theory of ¿Living Well with Chronic Illness¿ for a different context and population. The refined theory explains the experience of living well with advanced cancer illuminating a five phase iterative process: struggling, accepting, living with advanced cancer, sharing the illness experience, and reconstructing life. These five phases revolve around the core concept of Awareness of Dying, which varied from awareness of the possibility of dying, to accepting the possibility of dying, to acceptance that ¿I am dying.¿ Awareness of Dying led to a focus on living well with advanced cancer and movement towards living a life rather than living an illness.
Journal:
MEDICINA PALIATIVA
ISSN:
1134-248X
Year:
2018
Vol.:
25
N°:
2
pp.
105 - 113
La esclerosis lateral amiotrófica (ELA) afecta a diferentes aspectos de la vida de las personas y por ello, el objetivo de este estudio es conocer la calidad de vida relacionada con la salud (CVRS) de estos enfermos. Se realizó una revisión narrativa de los artículos de los últimos 10 años. La estrategia de búsqueda incluyó las palabras clave «esclerosis lateral amiotrófica» y «calidad de vida relacionada con la salud» y sus sinónimos traducidos al inglés y se aplicó en Cochrane, Cinahl, Pubmed, PsycInfo y Dialnet. Se incluyeron 9 artículos tras aplicar los criterios de selección. Se analizó el nivel de evidencia que generan los artículos utilizando como referencia las indicaciones de la «US Agency of Health Research and Quality» y posteriormente se analizaron los resultados de los estudios agrupándolos por áreas temáticas. Se identificaron un total de 3 áreas clave: la importancia de las necesidades emocionales, sociales y físicas de los pacientes con ELA; la presencia del cuidador y la CVRS de los enfermos; y los tipos de afrontamiento que pueden ayudar en la CVRS. La dimensión física es la que obtiene peores resultados de CVRS, pero dado que las dimensiones sociales y emocionales están también afectadas menos significativamente, la puntuación global de la CVRS permanece estable. La familia y el entorno del paciente surgen como aspecto clave a considerar en la atención a estos pacientes.
Journal:
PALLIATIVE & SUPPORTIVE CARE
ISSN:
1478-9523
Year:
2018
Vol.:
16
N°:
1
pp.
73-79
ICS ATLANTES
The PDI has intrinsic therapeutic value and is useful in clinical practice, and it is also a way of examining issues related to dignity and the meaning of life within the context of advanced-stage illness. There is a need for studies that examine patient experiences through a PDI-based intervie
Journal:
REVISTA ROL DE ENFERMERIA
ISSN:
0210-5020
Year:
2017
Vol.:
1
N°:
40
pp.
16 - 24
INTRODUCCIÓN. Conocer cómo los pacientes conviven con un proceso crónico es necesario para proporcionar un cuidado individualizado e integral. En la actualidad, no existe ninguna escala validada que evalúe la convivencia con un proceso crónico, como es la enfermedad de Parkinson. OBJETIVOS. Los objetivos fueron: 1) definir el concepto Convivencia con un proceso crónico; 2) diseñar una escala de medición del grado de convivencia en pacientes con un proceso crónico, y en concreto, con la enfermedad de Parkinson. METODOLOGÍA. Se llevaron a cabo dos pasos metodológicos. Respecto al primero, se realizó un análisis del concepto Convivencia con un proceso crónico, a través del método evolutivo de Rodgers. El segundo paso metodológico fue el diseño de la escala, a través de la guía propuesta por DeVellis. RESULTADOS. A través del análisis de concepto se identificó que la Convivencia con un proceso crónico es un proceso complejo, dinámico, cíclico y multidimensional compuesto por los atributos de Aceptación, Afrontamiento, Automanejo, Integración y Adaptación. En cuanto a los resultados del diseño de la escala, se desarrolló una medida autocumplimentada, con cinco opciones de respuesta, tipo Likert y 27 ítems. CONCLUSIONES. La escala diseñada, es una medida innovadora y de interés potencial clínico que permite identificar qué factor o factores hacen que la persona conviva mejor o peor con la enfermedad y, consecuentemente, intervenir de manera integral, acorde con las necesidades indi
Journal:
AQUICHAN
ISSN:
1657-5997
Year:
2017
Vol.:
17
N°:
3
pp.
241 - 242
Journal:
GEROKOMOS
ISSN:
1134-928X
Year:
2017
Vol.:
28
N°:
1
pp.
25 - 29
Las caídas son ¿acontecimientos involuntarios que hacen perder el
equilibrio y dar con el cuerpo en la tierra u otra superficie firme que lo
detenga¿. Las caídas recurrentes (presencia de dos o más caídas en un año)
constituyen un problema frecuente en centros residenciales, y predisponen
a las personas mayores a sufrir incapacidad, dependencia y múltiples
enfermedades. La aplicación de medidas de prevención puede disminuir
notablemente su incidencia y, por tanto, sus consecuencias.
El objetivo de este trabajo es identificar qué intervenciones de enfermería
pueden ayudar a prevenir caídas recurrentes en las personas mayores
institucionalizadas, y minimizar el impacto emocional que ocasionan estos
episodios. Para ello, se desarrolla un caso clínico y, tras el análisis de la
evidencia científica, se proponen intervenciones para evitar la recurrencia de
un episodio de caída y sus consecuencias. El análisis de este caso se estructura
en valoración de riesgo de caídas recurrentes e intervenciones de prevención
de las mismas. Y, a su vez, cada apartado se divide en aspectos físicos y
emocionales. La literatura especializada refleja que la valoración del riesgo
de caídas es clave para implantar un plan de cuidados. Conocer los factores
de riesgo intrínsecos y extrínsecos ayudará a los profesionales a diseñar
intervenciones de prevención. Asimismo, se ha identificado el impacto
emocional que producen las caídas en los pacientes y se proponen algunas
intervenciones para aliviarlo.
Journal:
MEDICINA PALIATIVA
ISSN:
1134-248X
Year:
2016
Vol.:
23
N°:
1
pp.
52
Journal:
NPJ PARKINSON'S DISEASE
ISSN:
2373-8057
Year:
2016
Vol.:
2
N°:
UNSP 16022
Understanding how a person lives with a chronic illness, such as Parkinson's disease (PD), is necessary to provide individualized care and professionals role in person-centered care at clinical and community levels is paramount. The present study was aimed to analyze the psychometric properties of the Living with Chronic Illness-PD Scale (EC-PC) in a wide Spanish-speaking population with PD. International cross-sectional study with retest was carried out with 324 patients from four Latin American countries and Spain. Feasibility, acceptability, scaling assumptions, reliability, precision, and construct validity were tested. The study included 324 patients, with age (mean +/- s.d.) 66.67 +/- 10.68 years. None of the EC-PC items had missing values and all acceptability parameters fulfilled the standard criteria. Around two-third of the items (61.54%) met scaling assumptions standards. Concerning internal consistency, Cronbach's alpha values were 0.68-0.88; item-total correlation was 40.30, except for two items; item homogeneity index was 40.30, and inter-item correlation values 0.14-0.76. Intraclass correlation coefficient for EC-PC stability was 0.76 and standard error of measurement (s.e.m.) for precision was 8.60 (for a EC-PC s.d. = 18.57). EC-PC presented strong correlation with social support (r(S) = 0.61) and moderate correlation with life satisfaction (r(S) = 0.46). Weak and negligible correlations were found with the other scales.
Journal:
PARKINSONISM AND RELATED DISORDERS
ISSN:
1353-8020
Year:
2016
Vol.:
25
pp.
52 - 57
Introduction: To explore the psychometric attributes of a new Satisfaction with Life Scale (SLS-6) in a wide Spanish-speaking population with Parkinson's disease (PD).
Methods: This was an international, cross-sectional study. Several rater-based and patient-reported outcomes measures for evaluation of PD (e.g., Scales for Outcomes in Parkinson's Disease-Motor) and other constructs (e.g., Duke-UNC Functional Social Support Questionnaire, Scale for Living with Chronic Illness) were applied together with the SLS-6. Acceptability, scaling assumptions, reliability, precision, and construct validity were tested.
Results: The study included 324 patients from five countries, with age (mean ± standard deviation) 66.67 ± 10.68 years. None of the SLS-6 items had missing values and all acceptability parameters fulfilled the standard criteria. Scaling assumptions allowed the calculation of a summary index from items 2 to 6, complementary to the global evaluation (item 1). For these five items, Cronbach's alpha was 0.85; the corrected item¿total correlation 0.53¿0.73; inter-item correlation, 0.45¿0.70, with an item homogeneity index of 0.55. The standard error of measurement, based on Cronbach's alpha for a single observation, was 3.48. SLS-6 correlations were moderate to strong (rs ¿ 0.35) with the patient-reported outcomes and weak to moderate with the rater-based assessments used in the study. The SLS-6 total score was significantly different according to PD severity levels establised
Journal:
EUROPEAN JOURNAL OF CANCER CARE
ISSN:
0961-5423
Year:
2016
Vol.:
25
N°:
4
pp.
551 - 569
The aim of the study was to understand the experience of people living with advanced-stage cancer through literature. The search included The Cochrane Library, PubMed, PsycInfo, CINAHL and Cuiden. Thirteen studies were included. A qualitative meta-synthesis was conducted. One thread emerged from the thematic synthesis: the desire to live as normally as possible, despite being aware of the proximity of death. Three themes also emerged: "a process that is unique" with its four sub-themes; "support network" and "health context," each of them having two sub-themes. This study concludes that living with advanced-stage cancer is a unique and complex process which has both positive and negative aspects. The review provides a comprehensive view of the experience, which considers the importance of the support network and the health context in which the person lives. In this study, "normalcy" is the adjustment to the new reality and living as closely as possible to the way one lived before the disease, while developing a new relationship with being finite and death. A better understanding of the experience of living with advanced-stage cancer will help health professionals to identify the needs of the patients in order to plan individual, high-quality care.
Journal:
REVISTA DE NEUROLOGIA
ISSN:
0210-0010
Year:
2015
Vol.:
61
N°:
10
pp.
447 - 453
Journal:
ANALES DEL SISTEMA SANITARIO DE NAVARRA
ISSN:
1137-6627
Year:
2015
Vol.:
38
N°:
3
pp.
439 - 452
A quarter of the people with heart failure are at an advanced stage of the disease, during which they experience numerous common and distressing symptoms that have an impact on all spheres of their life. In this context, there is a need for frequent assessment and clinical monitoring of patients. The aim of this review is to identify the instruments used in assessing patients with advanced heart failure. For the purposes of this study, any type of questionnaire, scale or functional test used to assess some aspect of these patients was considered to be an instrument. Forty-nine tools were identified that make it possible to assess symptoms, psychological, cognitive and spiritual aspects and quality of life. The information provided on the most used instruments and their availability and applicability is a first step for their possible integration into daily clinical practice. Thus, professionals who work with these patients can improve the identification of specific needs, enabling their subsequent management and monitoring.
Journal:
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
ISSN:
0885-3924
Year:
2015
Vol.:
50
N°:
6
pp.
874-81
The Spanish version of the PDI showed adequate psychometric properties when tested with advanced cancer patients. This research provides a three-factor alternative in Spanish to the PDI.
Journal:
ENFERMERIA (MONTEVIDEO)
ISSN:
1688-8375
Year:
2015
Vol.:
4
N°:
2
pp.
10 - 11
Titulo completo de la Revista: Enfermería: Cuidados Humanizados. Su ISSN es: 1688-8375.
Journal:
ANALES DEL SISTEMA SANITARIO DE NAVARRA
ISSN:
1137-6627
Year:
2015
Vol.:
38
N°:
2
pp.
225 - 234
Todos los participantes (n=40) completaron el estudio. La consistencia interna con el alpha de Cronbach fue de 0,71 y la armonía interjueces obtuvo un índice de Kappa moderado y bueno en la mayoría de los ítems (k=0,4-0,81) excepto en ¿lengua y encía¿ (k=0,33-0,37). La validez concurrente con la escala de la mucositis dela OMS fue aceptable (r=0,458). Todas las enfermeras (n=6) consideraron que la escala era fácil de entender y útil en la práctica clínica. Los pacientes dijeron que no les pareció incómoda la valoración de la boca con la escala.Conclusiones. La versión española dela OAG es un instrumento válido y fiable en pacientes con cáncer. Es una escala fácil de usar en la práctica clínica y bien aceptada por los pacientes.
Journal:
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
ISSN:
0885-3924
Year:
2014
Vol.:
47
N°:
1
pp.
189 - 197
The high responsiveness confirms the value of the MDAS for ongoing delirium assessment. Two differentiated factor loadings point to a potential future need for MDAS subscales
Journal:
CUADERNOS DE BIOETICA
ISSN:
0328-8390
Year:
2014
Vol.:
25
N°:
84
pp.
243-256
Todos los modelos incluidos en esta revisión proporcionan a los profesionales de la salud un punto de partida para la reflexión e incorporación de prácticas que traten de preservar la dignidad social de los pacientes con enfermedad terminal. Uno de los modelos identificados ha sido aplicado a la práctica clínica con resultados positivos
Journal:
METAS DE ENFERMERIA
ISSN:
1138-7262
Year:
2014
Vol.:
17
N°:
4
pp.
49-54
Journal:
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
ISSN:
0885-3924
Year:
2013
Vol.:
45
N°:
1
pp.
129-36
The ESAS-r is a valid instrument with adequate psychometric characteristics. This version is preferred by patients with advanced cancer. The Spanish version of the ESAS-r can, therefore, replace the use of the ESAS.
Journal:
European Journal of Cancer
ISSN:
0959-8049
Year:
2011
Vol.:
47
N°:
12
pp.
1863 -1872
Conclusion ESAS is a valid, reliable, responsive and feasible instrument with adequate psychometric properties when tested on Spanish advanced cancer patients..
Journal:
Journal of Palliative Medicine
ISSN:
1096-6218
Year:
2011
Vol.:
14
N°:
1
pp.
4 - 5
